Global Steps for MEF2C Haploinsufficiency Syndrome (MCHS)

We are thrilled to announce our new fundraising initiative: Global Steps for MCHS (MEF2C Haploinsufficiency Syndrome)!

The MEF2C Foundation, MEF2C Hilfsorganisation e.V. and Rarebird are launching an international effort to fund a clinical readiness study which is crucial for approving a treatment for MEF2C Haploinsufficiency Syndrome. While our global site with Cornell is now online, we need your support to boost the funds for the project and fastrack the work. Any funds donated will feed into the natural history work or the toxicology work which is also critical to demonstrate our clinical trial readiness. We have a global strategy and we are currently working hard to launch our European site to make pave the way and ensure the treatment can get approved globally as quickly as possible.

How you can help:

1. Donate: Every contribution brings us closer to our goal.

2. Step Up: Commit to walking 12,000 steps in 24 hours when you donate.

3. Share: Post a video or photo of your steps with our hashtags: #GlobalStepsForMCHS #MCHSUnite #StepsToCureMCHS #GlobalMCHSChallenge #StepsToTreatMCHS

Together, we can make this treatment available to children with MEF2C around the world!

Donate and Step Up now!

If you would like to Donate in GBP please donate to this campaign, don't forget to select gift aid if applicable! It makes a huge difference!

If you would liek to donate in EUR, please donate to the fundraiser page of our sister organisation MEF2C Hilfsorganisation e.V. so that you can claim a donation receipt if you donate from any country in the EU.

If you would like to Donate in USD and be able to claim the relevant tax relief, please use the link to the fundraiser of our sister organisation, Rarebird: TBU

Thank you for your support and for being a part of our global community! We can do this!

Make sure you follow us in social media as you can donate directly through Instagram or Facebook as well!