At first, my father was only struggling with short-term memory loss, but things turned for the worse in June 2017. Suddenly, he was losing his vision and balance. After a hard fall, a trip to the ER revealed a tumor in his brain. Brain surgery was performed on June 16th, 2017. A seven hour surgery led to a failed attempt at removing the tumor and even providing a biopsy.
Seven months later, my father went under the knife again, and the biopsy finally revealed that he had Erdheim-Chester Disease (ECD).
Never heard of it? Neither had most of his neurologists. Essentially, it is a very rare form of cancer (LESS THAN 500 CASES IN LITERATURE) with no cure. Each case is different as it can affect any organ in the human body. However, we will continue to fight this battle and use my father's inspirational story as an opportunity to spread awareness of this disease.
Unfortunately, my father's mass is in his brain which has affected all of his body functions, speech, vision, sense of touch, memory, and balance. Our main objectives are to raise money for future research in hope of finding a treatment plan, inform doctors of the rare disease, and spread awareness to families in hope of saving someone's life.
DonationsSee top donations
- Jonathan Diaz
- Ociel Ordaz
- Edgar Nunez
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
In the rare case something isn’t right, we will work with you to determine if misuse occurred. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more