This past month has been an extremely difficult time for our family. It is hard to put into words all of the emotions my wife and I are grappling with, but I will do my best.

Our son, Wesley, is just 4 years old and is by far the strongest person I have ever met. At just 18 months, our Wes was diagnosed with Hunter Syndrome, also known as MPS II. Hunter Syndrome is a rare genetic disease with no cure, and limited research and treatment options. All we know is that Wesley's time is limited, something no parent wants to hear.

As you can imagine, a lot of our time is spent in doctor's offices and hospitals, or comforting Wes during his weekly infusion. Seeing my son go through more appointments in his 4 years than I've experienced in my whole life is something I never thought I would have to do.

Recently, Wesley was denied Medicaid. Without it, I have no idea how we will afford the tens of thousands of dollars in medical bills every month. He needs this constant care to stay alive, and he was denied.

All we want to do is enjoy time as a family, watch Wesley be the best big brother to Willem, celebrate milestones, read bedtime stories and sing the wheels on the bus until we lose our voices, but instead we are fighting for our son to get the support he desperately needs.

If you have made it this far, thank you for taking the time to learn about our special boy. His mom and I love him so much and we would do anything to make him happy and healthy, but unfortunately the best we can do is make him happy.

Anything that you could give us would help immensely. Taking some of the financial stress off our family is a gift I will never be able to properly thank you for.

I am forever grateful for the community of people who love us, we love you all too.