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Give Sebastian Super Legs
0% complete
$8,548 raised of $13.7K
49 donations
This is Sebastian. He loves all things with wheels, robots, pokemon and pie. He is a fun and energetic 5 year old with two big brothers, one baby sister, and a mom and dad (Abe and Jessi Fillar) who love him very much.
He also has Cerebral Palsy and is unable to walk independently.
Cerebral Palsy is a disorder of movement, muscle tone, or posture that is generally caused by brain damage that occurs to an immature brain, often before birth (from Mayo Clinic website: https://www.mayoclinic.org/diseases-conditions/cerebral-palsy/symptoms-causes/syc-20353999). Sebastian has the most common type, Spastic Dipleseia which is considered a level 3 (moderate) on the Gross Motor Function Scale.
We are here on Gofundme asking for your help because Sebastian is in need of a surgery called SPML or Selective Percutaneous Myofascial Lengthening, so that he can gain more mobility and independence, avoid other more painful surgeries, and possibly walk unassisted.
SPML is essentially an outpatient surgery that makes very small punctures or holes in the myofascial or connective tissue of the muscles that are most affected by spasticity/ tightness. This will lengthen them and allow him to stand straighter and move more freely. He will also receive alcohol nerve blocks which will work similarly to botox and mute the spastic signal from his brain. (You can read more about SPML here: https://www.hydroassoc.org/what-is-spml-anyway-and-try-saying-it-3x-quickly/ and here: https://www.thedoctorstv.com/articles/2735-boy-gets-best-friend-life-changing-surgery
Sebastian has a surgery date set for September 10th. He needs what his surgeon Dr. Roy Nuzzo calls a “Triple Play.” This means he will be working on Sebastian’s hip abductors, gastrocs, and heel cords on both legs. This will cost $13,770 out of pocket because Dr. Nuzzo does not take insurance. His family can submit expenses to insurance and receive maybe $1500 (70% of the allowable rate after the out of network deductible is met). They are also responsible for all travel expenses and 10% of the hospital and anesthesia costs.
Your donations and prayers for Sebastian are greatly appreciated. Thank you!
He also has Cerebral Palsy and is unable to walk independently.
Cerebral Palsy is a disorder of movement, muscle tone, or posture that is generally caused by brain damage that occurs to an immature brain, often before birth (from Mayo Clinic website: https://www.mayoclinic.org/diseases-conditions/cerebral-palsy/symptoms-causes/syc-20353999). Sebastian has the most common type, Spastic Dipleseia which is considered a level 3 (moderate) on the Gross Motor Function Scale.
We are here on Gofundme asking for your help because Sebastian is in need of a surgery called SPML or Selective Percutaneous Myofascial Lengthening, so that he can gain more mobility and independence, avoid other more painful surgeries, and possibly walk unassisted.
SPML is essentially an outpatient surgery that makes very small punctures or holes in the myofascial or connective tissue of the muscles that are most affected by spasticity/ tightness. This will lengthen them and allow him to stand straighter and move more freely. He will also receive alcohol nerve blocks which will work similarly to botox and mute the spastic signal from his brain. (You can read more about SPML here: https://www.hydroassoc.org/what-is-spml-anyway-and-try-saying-it-3x-quickly/ and here: https://www.thedoctorstv.com/articles/2735-boy-gets-best-friend-life-changing-surgery
Sebastian has a surgery date set for September 10th. He needs what his surgeon Dr. Roy Nuzzo calls a “Triple Play.” This means he will be working on Sebastian’s hip abductors, gastrocs, and heel cords on both legs. This will cost $13,770 out of pocket because Dr. Nuzzo does not take insurance. His family can submit expenses to insurance and receive maybe $1500 (70% of the allowable rate after the out of network deductible is met). They are also responsible for all travel expenses and 10% of the hospital and anesthesia costs.
Your donations and prayers for Sebastian are greatly appreciated. Thank you!
Organizer and beneficiary
Jessica Fillar
Beneficiary