Give Oscar the best chance at life with SMA

Our sweet baby Oscar was diagnosed with Spinal Muscular Atrophy (SMA) type 1 at 11 days old. SMA type 1 is an aggressive and rare genetic disease. It permanently damages the nerves that enable mobility, breathing and swallowing. Without treatment, children with this disease rarely live past the age of 2.

After diagnosis Oscar had to wait 3 weeks for a gene therapy that stopped the progression of the disease. The nerve loss he has experienced means that he will have significant challenges in life. He will need to work hard to build the strength to sit up and bear weight on his legs and to fight respiratory illnesses. Doctors assure us that he will be in a wheelchair and will develop back issues like scoliosis.

We are asking for help to maximize the quality of Oscar's life with this disease. Funds will go toward years of private physiotherapy & chiropractor, dozens of mobility devices, an accessible vehicle and home, and nursing support. Your help is crucial as Oscar's mom has lost her income indefinitely as she assumes the role of full-time caretaker.

Thank you for your prayers and for your support - we hope that you will join us in raising Oscar up and giving him the tools to experience all the beauty and joys of life.