Give Kenzie a Chance at Relief and More Time

As a lot of you know, Kenzie has struggled with seizures since she was a toddler. A lot of you have prayed for her and watched her journey. For the ones that have not heard… Seven years ago, she had a seizure which resulted in having to be placed in a medically induced coma to rest her brain because it continuously seized. She had a multi-month stay in PICU, which resulted in genetic testing and a final diagnosis of a genetic mutation disease, Alpers Disease. We were informed then this is a fatal disease and would one day take her from us.

Fast forward to this September, her mom took her back to the hospital because she started having jerking movements that started in her hand/arm and eventually moved to her entire body. She has been intubated for the second time now since September after only being okay to come off of it for about a week. She started having complications and was unable to protect her airway. This sweet baby has been in two hospitals in the PICU since… they are not quite sure what it is, but it is not seizures.

The Children’s Hospital in Tennessee has been consulting with CHOP in Philadelphia as they have doctors there that specialize in her genetic condition. They have clinical trials there for children with her condition, and it’s had life-changing results. FINALLY, she has been accepted by CHOP and insurance has approved her as well. The last challenge is getting her there.

That is where this fundraiser comes in… her mom has been out of work with the exception of a day here and there and will be responsible for paying for the medical flight in whole or partly.

We are a prideful family and do not ask for help, but I will tell you… for this baby to get relief and more time, I would stand in the pits of hell alongside her parents to make sure this happened for her, so if you can or feel led… please share! Please help get this baby and her momma to Philadelphia!