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Bryan Miller Medical Assistance

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My son Bryan Miller is 29 years old.  He has a condition that is often genetic called Neurofibromatosis.  It comes in two types, NF1 and NF2.  Bryan has characteristics of both. This condition causes tumors in the nervous system.   In some cases they grow outward and in my sons severe case they grow along his spinal cord and in his brachial plexus.   This has caused major damage to his body.  He's had 10 plus surgeries, and has some neurological damage.  Presently he is in MD Anderson Cancer Center after removing two tumors that crushed his spinal cord.  He is looking at months of rehab and major life changes and possible loss of major motor skills.   Doctors recommend that he move closer to Houston area due to the increasingly dangerous status of his condition. MD Anderson is one of the hospitals who specialize in care of NF patients.  

  He has a wife, Mary and his son Kevin who is now genetically tied to this disease as well.  Chances are we will slowly move as a family to be closer to the area because his two brothers have shown signs but not the severity of the condition.  Restarting in another location, finding jobs with insurance to pay for his on going care will be difficult.  But getting there is the first obstacle.   They are not in a financial position in any way to do this on thier own, and we all would appreciate any help we could get to assist them with this major life change.   
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    Organizer

    TERRY MACKEWICH
    Organizer
    Cloudcroft, NM

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