Dorothy Harris is organizing this fundraiser on behalf of Curtis Crowe.
Update (11/12/19): Thank you to everyone who has been praying so fervently for our family, and everyone who has personally reached out to us to show support over the past few days. We discussed the new plan with the oncology team this afternoon. The bone marrow pathology report showed 80-90% leukemia cells. There are CD 19 and CD 22 cells detected. So, in order to target both types of cells, they have determined a plan for "sequential treatment" as they call it. Gabe will first be receiving an immunotherapy drug called Inotuzumab to target the CD 22 cells. This therapy will be a 1-2 hour infusion given on days 1, 8, and 15 (day 1 being tomorrow). We will be here at U of M inpatient for at least the first 2 doses. The side effects will be similar to those from the blinatumomab antibody therapy- fever, shakes, chills, rash, etc. It also can increase liver enzymes, which they will be checking frequently. Once the cell burden is down to 5% or less, Gabe will get the Car-T therapy as planned, to target the CD 19 cells. They still plan to do a bone marrow transplant in the Spring. Because of the high cancer cell burden, Gabe is also at risk for something called tumor lysis syndrome. Basically that means that the toxic crap inside the cancer cells spills into his system after they are killed and can cause problems. To combat this, Gabe will be on an oral medicine called Allopurinol 3 times a day. They are continuing IV Cefepime and IV fluids because he had 2 fevers yesterday. They will also continue oral Vanco to make sure he doesn’t have a recurrence of c.diff. The timeline for hospitalization isn't completely set in stone, but we are inpatient until further notice. We will definitely be here for Thanksgiving and likely for Christmas as well. We are blindsided and feeling numb. But we’re just trying to focus on doing whatever it takes to get Gabriel better. Tonight we’re snuggled in watching “A Christmas Story” as a family. Thank you for loving us through this.
Hello, my name is Dorothy Harris, I am the sister of Melissa and Curtis Crowe. This wonderful family was hit with heartbreaking news this week, their 9 month old son Gabriel was diagnosed with ALL, Acute Lymphoblastic Leukemia. Sweet Gabriel had been declining over the last few weeks, his appetite had decreased, he had been very lethargic, he was spiking temperatures very frequently, and he wasn't acting like his normal giggly/silly self. Since being admitted to the hospital, Gabe has received two blood transfusions, a platelet transfusion, and underwent surgery to have a mediport placed, a bone marrow biopsy, and a lumbar puncture. Gabe will be starting chemotherapy on 10/14/18 and will likely need to be hospitalized for at least a month, then he will need to be hospitalized on and off for chemotherapy for most likely the next 2 years. During his hospital stay, I know the Crowe family financial burden will be great due to the added medical bills and also because his parents will need to stay with Gabe for most of the time and will be unable to work. It is my dream to have some of their finances taken care of so that they will be able to focus their energy completely on taking care of their little Angel. We need your assistance, please help this amazing family by donating. Thank you to all of the incredible friends and family that have already reached out to the Crowe's with your thoughts and prayers, it truly means the world to us!