Getting Dallas to the Mayo Clinic

We finally got Dallas Jr an appointment at the Mayo Clinic in Rochester, MN. Those of you who know me already know that my oldest son is disabled. He has severe muscle weakness, and has hard time walking. He is in his wheelchair most of the time. Six and a half years ago he went to bed a normal 7 year old, and woke up the next morning with pain in his ankle. Over the next 3 months he declined steadily in health and he began to lose the ability to move on his own. He was put in the hospital and ran through test after test. He was losing his ability to swallow and was getting short of breath. He was placed on a very high dosage of steroids which helped his symptoms. Over the last 6 years he had been put on and off of steroids, IVIG, methotrexate, and other chemotherapy drugs to kill his immune system. We have put him through many muscle and bone biopsies. They have run bone marrow tests, many ECGs, MRIs, EMGs (that are very painful), and many other X-rays and study's. It too many to name. This kid has been through a lot and is very strong to still be in good spirits after all this. He has now been taken off all of the medications because they were killing his body and causing more harm than good.

After we talked with Dr. Proud two years ago, the fifth neuromuscular specialist that we have seen, she said that there wasn't any other test that she was going to run. All of his doctors are stumped and don't know what to do. He has been passed from Doctor to Doctor each one of them say thing they have no idea what he has and scratching their heads. We have been to specialists across Virginia and even went to the national institute for health in Washington DC. His symptoms are getting worse. He is still very weak at times. He also is having more problems breathing requiring me to take him to the urgent care to be treated.

Finally we have an appointment with the Mayo Clinic. We need help getting there and back car rental, hotel, food, and gas. I have some fund I can put toward this but it's far from enough. Without help we will not be able to take him to the doctors there. I hope and pray that they will figure out what is wrong with my son before it's to late. We are a strong family. Dallas Jr is happy as he can be but just wants to know what he has and wants to be normal again. I am asking everyone on Facebook to share this post so everyone that can help.

Donations

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  • Nancy Hobday 
    • $25 
    • 40 mos
  • Van Powers 
    • $25 
    • 41 mos
  • Cara McGrady 
    • $15 
    • 41 mos
  • Anonymous 
    • $1,200 (Offline)
    • 41 mos
  • Anonymous 
    • $50 
    • 41 mos
See all

Organizer

Amanda Stein Brown 
Organizer
Newport News, VA
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