Keeping MACI Healthy

Maci is battling a progressive termianl lung conditon. She was born at the Childrens Hospital in Phialdelphia. She see's 12 different specialiest and has 27 different diagnosis. She is the happiest little girl in the entire world and hardly complains even though she takes many medications and does vest therapy multiple times a day. She is poked and prodded and still smiles. We need help with keeping up with going too and from the Childrens Hospital, taking time off work, surgeries, appointments, ect..... We woul be very blessed if you could help our family.