Get this mama to the Mayo Clinic!

6 20.2024 Update

Got accepted I to pallative and if I need hospice I'm coveted for it but I don't want to get there. Please help if I can get there they may be able to get me in a transplant list which would be the best because I need a heart, liver and kidney all from one person. Ice been struggling mentally and I'm trying not to give up but I'm in so much pain all the time and ive never felt so alone or worthless. And I will beg for help because I need it because my kids need me and I want to be there for them. I hate seeing them cry because they know how bad my health is and it's getting harder to stay positive and strong. Please if you can help on anyway please do even if it's change or other fundraising ideas. If you don't wanna donate on here I have cashapp $kcutlip14 or venmo listed below. Being 33 and filling out a will and advanced care directive is all alot. Not to mention trying to keep up on bills and getting hospital bills, a van on the edge of life that has no air, balled tires a window that fell off the thing so it doesn't go up and windshield wipers that don't work not to mention house repairs that aren't being fixed. My life is falling apart and I need some form of hope. Please.

Update! I've been at the Cleveland Clinic for over a week now. They are running tests on my leg and foot still since it has turned blackish blue over the past few weeks. Not only is is blackish blue with red lines and spots the skin is bubbling and it constantly feels as if you had an open wound and ran it across pavement. I've had biopsies on my toe, a tube shoved down my throat to do an echo. Besides that I've had numerous blood draws, ultrasounds, dialysis and meetings with drs. So far they found a clot on my catheter in my port for my heart and they cut me internally during a stomach tap they tried to do that I asked them to stop bc I knew something was wrong. So for 4 days so far I've had to get blood everyday. Because they wouldn't let me get the tap my ribs have started to petrude painfully. This is why I wanted to go to Mayo, why I NEED to get there bc I'm afraid of staying here. They told me this may be by new normal and to start thinking about comfort care through hospice. I don't wanna believe that

Hi, my name is Kayla. I'm a mom to 4 beautiful children and have a rare medical condition called AHUS. It has caused my kidneys to fail, my heart to start to fail and liver to start to fail. I now am dealing with my foot to be in excruciating pain and it radiates up my leg and is spreadingto my other leg. The doctors have no idea what it is. On the other hand they have confirmed I have cirrhosis of the liver and found clots around my port access where it connects to my heart. I am desperately trying to raise money to get to the Mayo clinic but it has been a rough journey with very little help. If you have any fundraising ideas or want to donate please contact me or donate to $kcutlip14 at cashapp or @kayla-cutlip-2 at venmo. Please help I really want to see my kids grow up. It is estimated less than 625 people in the US have AHUS. Below is a link if you'd like more info on this condition. This has been the hardest 5 years of my life and is a fight every day. Being hospitalized has made it hard to make money to pay bills, rent and buy food. We have been using churches and such already they can only help so much though.

https://rarediseases.org/rare-diseases/atypical-hemolytic-uremic-syndrome/