Thank you for taking the time to visit our GoFundMe page, this is not something we’ve taken lightly to do but more feel its something we HAVE to do!

As parents, to not be able to help your child is pretty gut wrenching feeling - BUT we are the type of family to put our best foot forward, focus on the positives and pull together as a team <3

Last year we came into contact with a pioneering medical treatment in Mexico that COULD change Quinn's life.

This is a non-invasive, 28 day treatment that effectively awakens new neurons to produce pathways in the brain – giving opportunity for rewiring to take place. This is done using the Cytotron machine – where Quinn would lay for an hour a day – using radiofrequency waves. This treatment has seen life changing results in patients with epilepsy and multiple children with SYNGAP1 have had treatment to better every aspect of their SYNGAP1 effects.

Our HOPE from this treatment is Quinn to have a better way of life with Our main focus being for Quinn to gain more seizure control!! She may never be seizure free but if we can gain control, she can thrive to her full potential. Likewise this treatment can also improve fine & gross motor skills, developing speech and enhance her cognitive development!

For those of you who don’t know - Quinn is our 8 year old daughter, she’s diagnosed SYNGAP1 which has caused drug resistant epilepsy, she’s non-verbal and has a learning disability.

To an outsider – Quinn is happy, she’s always smiling and has a laugh that you can hear for miles… but she’s been on quite a journey in her little life.

This is our Journey with Quinn so far…

Our story began back in July 2019 -

This is where our epilepsy journey began - when Quinn was just 17 months old! We noticed 'eye rolling' episodes that we'd continue to monitor for the next couple of months. At first, these were so short and quick that you'd blink and miss them, they did not cause any harm and were incredibly difficult to record but In September 2019 after a holiday to Cornwall, they changed. For the first time, her legs buckled during an episode, we took her to the GP as soon as we were home and whilst we awaited our Paediatric referral - these episodes changed again! By this point we were trying to gather video evidence and thank goodness we had as we managed to get this change on video. Quinn was taken straight to A&E where she was admitted following our video evidence and multiple doctors witnessing these episodes! She had bloods, brain MRI (which came back clear) and monitoring during our stay with a scheduled EEG for 2 weeks time.

This where our journey took a dramatic turn – with no epilepsy in our family – Quinn's EEG noted 9 seizures in 5 minutes!! To sit in a Consultants office being told your less than 2 year olds EEG was ‘very abnormal’ and to start medication immediately was a very daunting realisation. Quinn was diagnosed with atypical absences and atonic seizures at 22months old!

Over the next 4 months, Quinn's seizures developed into nothing like we’d ever known; we were in lockdown, all medical input had been put on hold, she was on 2 medications, her seizures were VERY uncontrolled and over the lockdown period we were seeing 100 seizures a day – we were having daily facial and head injuries, she was exhausted and every activity of the innocent toddler she was – was being ruled by her epilepsy.

And its never stopped ruling!!

In August 2021, just weeks before our wedding, Quinn was given a diagnosis of a Genetic condition called SYNGAP1. We were so relieved to finally have an answer because there had been so many other issues alongside her epilepsy – it gave us clarity. Quinn was textbook SYNGAP1!

But … its very rare. Currently there are only 1700 known, diagnosed cases WORLDWIDE! Syngap1 is an intellectual impairment, where a single cell during pregnancy hasn’t quite followed suit. This cell mutation, has effectively caused Quinn's brain to be lacking by 50% in syngap protein which is essential for brain development and its effects are exactly Quinn.

• Drug resistant epilepsy

• Non verbal

• Low muscle tone/ hypermobility

• Developmental delay

• Intellectual impairment

• Sleep issues

• Sensory issues

• Hyperactivity

And these are just the issues that effect Quinn on a daily basis.

Quinn speaks only 3 words, She had been diagnosed with a learning disability and mentally aged at 22months old at 8 years old. Over the past few years we’ve had multiple therapy services involved to increase her skills and independence, she has specialised equipment such as a wheelchair, helmet and medical chairs in the home in order to be able to sit safely, we’ve renovated and adapted our home to ensure her safety and supervision is maximum at all times.

Unfortunately her epilepsy is still VERY uncontrolled and a recent EEG in February 2026 showed 122 daytime seizures - despite being on 3 medications and having a VNS device surgically fitted in August 2024. We’ve failed 2 previous medications as well as the Ketogenic diet and quite literally don’t know what we can do to help her! We are at a point where we are continuously increasing medications with no effects to her seizures, they are dangerous, they fast and they don’t hold back. Already this year alone we have seen Quinn's tooth knocked out and more recently she’s broken her foot following an atonic seizure and falling awkwardly.

As a family, this is extremely hard to navigate, it effects Quinn's everyday tasks – eating, toileting, getting dressed, playing, walking, moving around and even just watching TV or playing alongside her little brother... Quinn experiences MULTIPLE seizures during every single activity of her day. We watch it, but she feels it!

Now its our turn to TRY and help her in any way we can!

Quinn is an incredible human being, she’s so resilient, she never complains, she’s full of energy and only greets with positivity, she holds no judgement and literally tries her absolute best in all she does. She lights up every room, super big smile and a very loud infectious laugh! She is already a beautiful person with all of her daily battles, to be able to just better her epilepsy would just be the greatest thing to be able to relive her of; she may never be seizure free but if we can have the opportunity to at least give her the chance to have a life of low seizures – we just know she’d be an absolute powerhouse! Even more than she is already!

We would really appreciate YOUR support & help in any way possible to raise our £40,000 goal so we can take Quinn for this pioneering treatment and better Quinn's everyday <3