Cody has been in and out of hospital. Investigations showed Cody has chromosome abnormalities, duplication of 5p15 and deletion of 10p15.
Approaching 1 year old Cody has significant development delay. Cody is unable to sit unaided and nowhere near ready to stand.
Cody’s future is unknown as no one else in the world has the same combination of chromosome abnormalities as him, other children are known to have duplication of 5p15 and others have deletion of 10p15 but to date no other child has the two together.
We have been told that Cody may not walk or even talk and that he may suffer seizures.
We can only focus on the here and now currently we are working hard to help build his muscle tone. Cody has swimming once a week and regular massage & physiotherapy.
Cody has outgrown his car seat but does not meet the criteria to move to the next stage as his weight is too low and he is unable to sit unaided.
We have had Cody accessed and he requires a seat to keep him rear facing, we also need to pay for isofix to be fitted in our car as Cody is unable to go in any seat belt fitted seats.
Cody uses whittlesey’s sensory room once a week at the Ormistons Children's Centre which he really enjoys. We would like to purchase a few bits of sensory equipment for Cody to use at home.
Cody is learning sign language which he has taken to really well and can already sign for milk.
We are fundraising for Cody to help pay for his car seat, sensory equipment and a trike for summer.
We would like to thank you for taking the time to read Cody’s story, he is a very special, unique little boy who we adore.
A massive thank you for any donations, every penny is gratefully received and will help provide Cody with equipment to aid his development giving him the best start possible for his future.
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