Who this will help
Welcome to Garrett’s journey to fight Hunter Syndrome. Jason (Tiesling), Breanne(Busterud) and Garrett will be the recipients of all funds raised.
Why I'm fundraising
On September 29th, 2023 Garrett (just shy of his first birthday) was diagnosed with MPS type ll- Hunter Syndrome. Currently, only one FDA treatment option is available for Hunter Syndrome. Breanne and Jason have been diligent in their search for alternative treatments for Garrett.
Garrett has been accepted in a clinical trail at Chapel Hill, North Carolina.
Breanne, Jason and Garrett have made several trips to NC for tests and procedures prior to the start of infusions. Once infusions begin, Garrett will receive weekly treatment for the rest of his life.
December 31st, 2023, Breanne and Garrett will be relocating to North Carolina for 3-6 months to continue treatment.
The impact of your support
Jason, Breanne and Garrett graciously ask for your help in this journey. Your support will provide security during Breanne’s unpaid leave of absence from work. This is the first time as a family they will be separated by distance and will incur significant expenses related to travel, medical and daily life.
Organizer and beneficiary
Breanne Busterud
Beneficiary


