Gabriel “Angel Baby” Burchfield-CHARGE Syndrome

We are the Burchfield family, Kyle, Emily, & Grace. We received the worst news any parent can get a few months ago, our child will not survive. Emily and I, along with our doctors, were determined to figure out why. Why would we not be able to see our baby boy grow up?

As the numerous doctor visits started, the amount of questions grew along with it. With more scans complete, we were able to determine that Gabriel had problems with his heart and lungs. No doctors were able to determine why until more scans and tests had to be done.

We finally got our answers through genetic testing. A very rare genetic disorder occurred, CHARGE syndrome. This syndrome occurs in approximately .00006% of births. We may have had our answer, but that did not heal the pain that occurred in our lives.

Months after the doctor appointments and tests, we start to get bill after bill of rejected insurance coverage for the medical tests.

I am a high school teacher and Emily is a mom/baby nurse. We are very well aware of how hard times are for majority of families across the country. Any donation size would be greatly appreciated and help our family make it through this difficult time.

God be with you,

Kyle, Emily, & Grace Burchfield