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When I found out I had a rare cancer called Chordoma. I was in shock! This is a 1 case per million per year chance I had it, that is how rare it is. Then you read 7-9 years survival rate. I couldn't have this disease......... But I did and I do.
http://www.chordomafoundation.org/understanding-chordoma/
I am blessed with an amazing family and friends that are right beside me in this long journey to beat this. My boyfriennd, 3 children and my mom and stepdad were all there for a very long surgery at Vancouver General Hospital, Vancouver, BC by 2 amazing surgeons. It took a team of a Neurosugeon and Ear Nose and Throat Surgeon and a room of many training doctors that went in through my nose and removed 90% of a fairly large tumour off of my Clivis which is located at the top of my spine in my head next to my brain.They had to leave some that was attached to my brain wall as well as some that has feelers located on my spine.They removed as much bone as they could without comprimising the spine to much causing a fuzion as I have a herniation of a disk at C-6 in my neck. Chordoma tumours are a returning tumour and that is what makes this a terminal cancer. When I first read up on Chordoma the first paragraph said average life was 7 - 9 years, that study was in 1995 and no new updates and studies have been done. I want to beat this Cancer and live way past 7 years!
To stop the growth of my current tumour our next step is radiation in Loma Linda California as there are only a few centers in the world that do Proton Beam Radiation.
http://www.chordomafoundation.org/treatment/
Our BC medical will pay for out of country treatment as we do not have the Proton Beam Therapy radiation in Canada but I must cover travel, housing,food and medications. My oncologist has submitted our application and will find out soon when I go. I am thinking I will be there for Christmas. That will hurt not to be near my family. I want to try and bring my daughter for 1 week to be with me during the hollidays so I am not alone.
Thank you to all who read my story and donate. I have never been so scared in my life. I felt so alone at first not knowing much about the disease as I am the first patiant in Prince george with a Clival Chordoma. My oncologist is learning as well. But with the support of my friends and family, and I also also found a support group, I will get through this. I have grand children to watch grow up.
I thank you all for reading my story and sharing with friends and support groups. It took a lot to ask for help but when there are no other options......well you know. Hugs and much love to you all!!!
Thank you!!!! Christine
http://www.chordomafoundation.org/understanding-chordoma/
I am blessed with an amazing family and friends that are right beside me in this long journey to beat this. My boyfriennd, 3 children and my mom and stepdad were all there for a very long surgery at Vancouver General Hospital, Vancouver, BC by 2 amazing surgeons. It took a team of a Neurosugeon and Ear Nose and Throat Surgeon and a room of many training doctors that went in through my nose and removed 90% of a fairly large tumour off of my Clivis which is located at the top of my spine in my head next to my brain.They had to leave some that was attached to my brain wall as well as some that has feelers located on my spine.They removed as much bone as they could without comprimising the spine to much causing a fuzion as I have a herniation of a disk at C-6 in my neck. Chordoma tumours are a returning tumour and that is what makes this a terminal cancer. When I first read up on Chordoma the first paragraph said average life was 7 - 9 years, that study was in 1995 and no new updates and studies have been done. I want to beat this Cancer and live way past 7 years!
To stop the growth of my current tumour our next step is radiation in Loma Linda California as there are only a few centers in the world that do Proton Beam Radiation.
http://www.chordomafoundation.org/treatment/
Our BC medical will pay for out of country treatment as we do not have the Proton Beam Therapy radiation in Canada but I must cover travel, housing,food and medications. My oncologist has submitted our application and will find out soon when I go. I am thinking I will be there for Christmas. That will hurt not to be near my family. I want to try and bring my daughter for 1 week to be with me during the hollidays so I am not alone.
Thank you to all who read my story and donate. I have never been so scared in my life. I felt so alone at first not knowing much about the disease as I am the first patiant in Prince george with a Clival Chordoma. My oncologist is learning as well. But with the support of my friends and family, and I also also found a support group, I will get through this. I have grand children to watch grow up.
I thank you all for reading my story and sharing with friends and support groups. It took a lot to ask for help but when there are no other options......well you know. Hugs and much love to you all!!!
Thank you!!!! Christine