Beginning in 2011, not long after my father's death I grew ill, gravely ill. I was hospitalized for the first time in February of 2011 and between then and last week, I have spent an accumulated 30 months in either hospitals or rehab centers battling an array of illnesses brought on by an undiagnosable immune deficiency.
So far I have been through:
9 bouts of bi-lateral pneumonia
Sleep Apnea caused by damage from pneumonia
Full respiratory failure
Multiple occurrences of C-diff
Positive tests for MRSA
Several diagnostic and life threatening surgeries. The last one occurred when the pneumonia caused me to cough so hard that I coughed a hole in my lymphatic system, causing lymph fluid to drain into my heart cavity, nearly killing me.
Last week, I was scratched (very minimally) by a cat and the tiny scratch triggered a massive cellulitis outbreak on my shin, fevers in the 103 range, dizziness and disorientation and massive headaches, resulting in yet another 4 day hospital stay.
My cd4 white cell count is about 25% what a normal person’s is and I am susceptible to anything from the common cold, to the most uncommon infections and all of the treatments have cost us money.
The constant reoccurring illnesses have meant that it is impossible for me to hold down a normal job without getting very ill and so we have been trying to set me up in a small, work at home business involving plants.
But the bills have gotten behind. Kim’s amazing kindness has put me before our bills and everything, keeping me in the preventative antibiotics has almost put us out of house and home.
I am asking, as humbly as I know how for help. We need to pay off what we owe and to do at least a little toward trying to get my business Stone Monkey Gardens off of the ground.
We have several pressing bills that we cannot forego any longer and need to get caught up as quickly as possible so any help would be so very welcome.
I know how hard things are, and so I am asking that if you can give, please do so, if you can’t, I understand (gods, do I understand) but I will ask you to please share this. I hate that the burden of my illness has fallen on my family and I want a chance to prove that I can still be magical, involved and that I can thrive.
I love you guys for at least reading this, thank you.
- Joanne Popovich
- Anthony Casciato
- Marie-Laure Landais
- Sonne Seifried
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