Prayers for Jayson
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Our family was not aware that a stroke could happen in a child, must less an infant, until it happened to our son Jayson. By all accounts, he was perfect when he made his way into the world in 2018. although exhausting, our stay in the hospital was uneventful; however couple hours after being in the recovery room after delivery, he awoke crying. After some time, he quieted down but appeared to stare off in a daze, For an hour he continued to stare and refused to feed. Sometime later, another nurse took over Jayson’s care and while taking vitals and trying to feed him, she watched Jayson turn his head and eyes to the left, followed by twitching of his right arm and leg; unmistakable signs of a seizure. While she discussed what had just occurred with the doctor, Doctor announced it was time to take us over to another hospital to the NICU because Jayson absolutely needed more intervention than he was receiving. It would be 2 more days until we finally received a diagnosis of stroke. But during that time Jayson was hooked up to an EEG monitor, received heavy doses of anti seizure medication, had low oxygen levels, a CT Scan, an MRI, an EKG, was evaluated by different specialist. Nothing prepares you for bad news, not even after watching your child hooked up to monitors and ventilators for days. When his neurologist presented the stroke diagnosis to his entire left side of his brain and partial right, at that moment it was as if the air was knocked right out of our lungs. we watched him describe the MRI and all the damage that had occurred. And all we wanted to know in that moment was if he was going to survive and if he did, would he require 24 hour assistances for the rest of his life; questions that his doctor was unable to answer. So after 22 long days in NICU,that brings us up to date. We have been home since end of December 2018 with ongoing appointments weekly between many specialist. As he may be only couple months our team of doctors is trying to map out a plan for his present and future. Our goal, is to do everything we can to provide Jayson with care he needs and raise him to be the best he can. Please help our wonderful family spend more time loving one another than worrying about finances. If you can share this post, it would be much appreciated.
TEAM JAYSON
Baby Hulk
TEAM JAYSON
Baby Hulk
Organisateur
Valeria Hernandez
Organisateur
Buckeye, AZ