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On September 9th, 2019 we found out that our almost two month old grandson Parker DeFruscio was diagnosed with Sagittal Craniosynostosis. At the time we had no idea what that even was, we were soon swamped with information explaining this rare birth defect that 1 in every 3000 children will suffer. Craniosynostosis is when the sutras in the skull closes prematurely which can cause built up pressure from brain growth in the skull, as well as learning disabilities, blindness his brain will grow without the needed space to expand. The only option is to have immediate surgery where they will remove approx. 1 inch in width by the length of his skull. This will allow his brain to grow. We are asking for Prayers for Parker as he starts this journey that will give him the opportunity to thrive.
With surgery, doctor visits, co-pays, travel expense, medicines, helmets, deductibles, loss of income (mom is self employed) all hitting this young family we have decided to try and help.
My daughter and son-in law have had multiple miscarriages with the assistance of fertility medication were finally able to conceive and carry to term this beautiful baby.
Surgery needs to be done immediately while the skull is still soft. Parker faces the danger of surgery and all that is involved with operating on a then 3-month-old. Parker will be in the hospital for several days bearing all goes well. When operating on an infant this young, there are many fears of the unexpected. The operation is scheduled October 30th, 2019. Surgery is invasive and when it’s all said and done it will cost thousands of dollars. Parker will also need various helmets through the next year along with extensive follow up and care to help ensure that the shape of his skull and brain grow and heal properly.
I’ve created this go fund me page in hopes that it can help with some of the fears, and financial stress that this young family in embarking on.
If in your heart you can spare a little to help this family, we would greatly appreciate it. Please keep Parker and his parents in your prayers as they start this journey.
With surgery, doctor visits, co-pays, travel expense, medicines, helmets, deductibles, loss of income (mom is self employed) all hitting this young family we have decided to try and help.
My daughter and son-in law have had multiple miscarriages with the assistance of fertility medication were finally able to conceive and carry to term this beautiful baby.
Surgery needs to be done immediately while the skull is still soft. Parker faces the danger of surgery and all that is involved with operating on a then 3-month-old. Parker will be in the hospital for several days bearing all goes well. When operating on an infant this young, there are many fears of the unexpected. The operation is scheduled October 30th, 2019. Surgery is invasive and when it’s all said and done it will cost thousands of dollars. Parker will also need various helmets through the next year along with extensive follow up and care to help ensure that the shape of his skull and brain grow and heal properly.
I’ve created this go fund me page in hopes that it can help with some of the fears, and financial stress that this young family in embarking on.
If in your heart you can spare a little to help this family, we would greatly appreciate it. Please keep Parker and his parents in your prayers as they start this journey.