The Nicholas Meola Fund

By way of introduction, my name is Michelle Meola and I am the mother of an extraordinary 11 year old boy named Nicholas. At the age of two, he was diagnosed with Duchenne Muscular Dystrophy which is a fatal genetic disorder. As the disease progresses, the muscles weaken, loss of ambulation occurs and eventually the heart and muscles of respiration fail.

Our family moved July 2012 in anticipation of his loss of ambulation which followed shortly thereafter. The transition from walking to a wheelchair was extremely difficult for my son. Socially, emotionally, physically, and financially the disease has taken a toll on our entire family.

While we struggle with the enormity of our situation, our inability to provide the needed durable medical equipment (DME) frustrates us the most! 

Our health insurance plan has minimal DME coverage and our funds have been exhausted by modifying our home to make it handicap accessible. The list of needed items seems endless and overwhelming: handicap accessible van ($50k), power wheelchair ($20k), Hoyer lift ($1k), cough assist machine ($7k), hospital bed ($5k), etc.

Our mission, the same as most families, is to provide our child with the best quality of life. A happy, adventurous, joyous life filled with friendship, community, solidarity, and emotional support.

In this spirit, we now must find a solution and help him...

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Tanya Braun 
Lyndhurst, NJ
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