The following week she was released from hospital and was able to recover comfortably at home and was back to her normal self enjoying the school holidays and Christmas with her family.
This brings us to now, she went in for a routine check-up late March which resulted in the doctors asking for her to have another eye test which found that the cyst on her brain had built again, and another operation to drain the fluid was scheduled.
We took her into hospital on 14th April for further tests and another operation which was scheduled for the 17th. Unfortunately, during that operation something went severely wrong which was not a result of her condition. Due to this Taylah has irreparable severe brain damage which will mean that she will always need fulltime care. In the coming weeks she had another two operations to help lessen the damage that was created in the first operation and release pressure. Taylah at this stage is nonresponsive, she cannot control her movements, cannot control her bowels and cannot sit up in a wheelchair and 5 weeks later she is still in hospital.
As you could imagine this has put a massive strain on our family life, due to the current times with Covid-19 we as a family cannot be in the hospital at the same time. Taylah’s mum Mel will not be able to return to work as she will now need to become a full-time carer for Taylah. We also are working extremely hard to bring her home, to do this we need to modify the house to accommodate for Taylah’s condition we will also need to obtain a vehicle that would need be converted to accommodate her wheelchair. Taylah will need ongoing rehab both in and out of the home.
We have also spoken with a Doctor in Sydney who has told us of advancements in stimulating therapy of the brain which is new technology that has been used in America where a machine stimulates the damaged pathways that are no longer working and they have had some great successes with this technology, the Doctor believes that Taylah could benefit from this technology.
She is not a candidate for the Technology just yet due to her still being too unwell, but he believes that once the travel restrictions are lifted we should arrange to get Taylah up to Sydney when she is a little better and start on this therapy as soon as possible.
We have started this Go Fund Me page in the hope to raise funds so we can get the family home converted and bring Taylah home, purchase a suitable vehicle and most importantly arrange for Taylah to be taken up to Sydney to have the new Stimulus therapy on her brain.
For Taylah to have the therapy in Sydney for the 6 months, this will cost in excess of $100,000 alone.
This therapy treatment could take up to 6 months to get the best outcome which would mean we would need to be in Sydney for this entire time as there is no where in Melbourne that offers this treatment.
Thank you for the time in reading Taylah’s story and any assistance that you can offer will be greatly appreciated, as this will go such a long way in helping our family financially dealing with this heart breaking situation we now find ourselves in.
Thank you for supporting Cameron, Melanie, Taylah and Olivia
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