I’ve been hanging in there while living with ALS [Lou Gehrig’s disease] for over 4 years now. And while difficult, challenging, and always slowly worsening, I’m glad to be alive and making the best of it.
When I couldn’t carry a walker on stairs anymore last year, then stopped driving a car and needed an electric wheelchair, it became urgent to move to a more accessible and nicer apartment. With family and friends help, I did! But the problem is its market rate rent price, which is too sky high for my disability and part-time income for work teaching online.
The result is lagging in health insurance payments, ordering groceries, and all general expenses.
Subtracting from it all, is reduced monthly SSDI payments due to them charging me for backpay of Medicaid before the government determined I am ineligible for since I still work!
Okay, then how to survive when my abilities only allow limited work? [ALS slows everything down and robs endurance]
That’s why I am here, with a necessary move of self-aggrandizement, jumping into fundraising-land to ask for a little help to save the day.
Btw, I am pursuing below market rentals for the disabled, with one potential place that may be gained soon…but until then I need to get by during the long waiting periods.