PLEASE SEE UPDATES!- BIG NEWS! Patrice has her surgery tentatively scheduled for the month of May!
We are still looking to continue to raise funds for Patrice's surgery as we have received the other half of the quote for prosthetics making the surgery over 30,000 (not including what was already spent of pre-treatment, diagnostic imaging and procedures in the last 4 months).
In an effort to be transparent, please refer to past updates for photos of estimates/ costs. A BIG THANK YOU to Dr. Moghadam (Chief of surgery at the Montfort Hospital/ Maxiofacial Surgeon at Argyle and Associates) for contributing $4,000 towards Patrice's surgery. Let's continue to spread the word and donate!
We would like to continue to raise funds for the Canadian Organization of Rare Disorders to help others with Rare Disorders/ Diseases to find cures and help with funding. We need your help! Please help us reach our goal of $40,000 to cover surgery costs for Patrice and give a sizable donation to the CORD Foundation. We can do it! We are over halfway there! Thank you to all of those who have given to date! Thanks for your support, thoughts and prayers!
Patrice's Story: Some call her sister, others call her friend, to many she’s a counsellor but I know Patrice Hall as being a fighter! For anyone else who has been blessed to have this selfless lady in their life, they’d know that she’s always one of the first people to lend a helping hand; yet, never asks for help or anything in return. She’s caring and strong and in the last year and a half has silently had her share of health and emotional difficulties.
From having a lumpectomy to undergoing radiation, losing some of her hair, having brain surgery for an aneurysm, a complicated pregnancy and spending more than a month in CHEO (Children’s Hospital of Eastern Ontario) with her newborn son; this lady has sure been through a lot! With Patrice, nothing has been easy. Her health issues have always been complex, and yet again she’s faced with another rare condition, this time not covered by OHIP (Ontario Health Insurance Plane) or private insurance.
Patrice was born with Hereditary Spherocytosis (HS) ( a rare blood disorder that attacks red blood cells and bone marrow) as well as Ectodermal Dysplasia/ Anodontia ( a rare genetic disorder than can affect your skin, hair, teeth and/or bones). Some of you might have remembered Patrice undergoing several surgeries to correct how these illnesses affected her teeth and bones during a childhood and adolescent years. Although partially successful, over the years and with other medical challenges and treatments; her bones have become weakened and she requires a bone graph (osseointegration) in her face to support her upper mandible, teeth and cheek bone leading up to her right eye socket. Without this surgery, her bones will continue to degenerate and the damage will continue to spread eventually causing her facial structure to collapse, teeth to be lost and other parts of her face like eyes and nasal cavities vulnerable to deformity and injury.
The estimate for the surgery is $13,845 not including diagnostic imaging, pre-treatment and lab fees for prosthetics/ implants which will push costs to over $30,000. I am asking for your support to help Patrice raise these medical costs. Being on maternity leave, having a chronically sick infant and not being eligible for medical coverage, makes finances challenging. Any additional funds raised, will be donated to the Canadian Organization of Rare Disorders (CORD) and help those who have medical costs not covered by OHIP as well as research.
To learn more about this organization or these rare conditions, please see links below. Please SHARE this Go Fund Me page and let’s help one of our very own community angels! Every donation, big or small is greatly appreciated! THANK YOU!
Canadian Organization of Rare Disorder (CORD): https://www.raredisorders.ca/
National Organization of Rare Disorders (NORD): https://rarediseases.org/rare-diseases/anodontia/
Ectodermal Dysplasia and Anodontia: https://www.nfed.org/?gclid=EAIaIQobChMItYDPxcr_3wIVBuDICh0K_A8pEAAYASAAEgKkm_D_BwE
Witkop Syndrome: https://www.omim.org/entry/189500
Hereditary Spherocytosis (HS): https://ghr.nlm.nih.gov/condition/hereditary-spherocytosis