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My niece Cindy has 4 daughters. Her youngest daughter is 6 months old. Michaela was diagnosed with "Esophageal Artresia". A rare birth defect, where the baby's esophagus is not formed at birth. She was born at CHOP, where she remains for now.
Michaela is a true warrior !!! She has undergone 7 failed surgeries, covid & had to Detox from a morphine addiction along with other pain meds, from all her surgeries.
It is undecided for now, if Cindy & the baby will be flown to Boston's Children's Hospital (where insurance won't cover) or the Surgical Team from Boston, be flown to Philadelphia (CHOP), for her multiple surgeries.
The surgery Michaela needs is called "Jejunal Interposition" - where a part of Michaela's small intestines is taken & used to make a full esophagus.
Boston is the only hospital that is skilled & equipped for this required surgery, of this kind.
If this surgery is held here at CHOP, this would be a "Blessing in Disguise". Michaela will be the first patient for this surgery here in Philly.
The silver lining, CHOP is currently investing into top of the line Medical Equipment to keep here in Philly, equivalent to what Boston has now.
The surgery will be held in an auditorium style setting, surgery room for our CHOP doctors to watch & learn. Recorded for future teachings !!!
Michaela is now 14 lbs, needing to be no less than 25 lbs for this surgery. This delay in time is giving CHOP more time to get the new medical equipment and all their plans together.
We are excited, through Micheala, CHOP is investing into medical equipment & expanding their surgical skills, to be a more exceptional hospital, than it already is. She is laying down the footprints for future patients.
I am launching a GO-FUND-ME in hopes to ease the financial stress for this family.
Please have continued prayers, as they begin Michaela's long road for recovery.
Organizer and beneficiary
MaryLouise Scharff
Beneficiary

