If you are interested in being a living donor please contact Helen his transplant coordinator at Montefiore Medical Center.
Chris still desperately needs a life-saving donor kidney, blood Type (O).
We hope to be on the way to recovery soon!
I wrote this song, “My Brother, Big Brother,” as an ode to Chris, because he deserves this and so much more. If you don’t know him already, you’ll get to know him a bit through the song. And with the help of my wonderful producer, Tony Colluccio, we made this happen!
Every little bit helps, and it starts by simply buying this song on iTunes or any platform in the link for 99 cents and sharing it everywhere: All money made through this song will be for his kidney transplant, and anything left over will go towards the Iga Nephropathy Foundation! The expenses will be major, so any extra donations can be made below.
Thank you so much for your support!
Everyone who knows me has probably heard one story or another about my brother Christopher Rybin. And everyone who knows him has probably heard one of his sarcastic comments. Yet, beyond all the stories and snarky comments, he has the kindest, most generous, humorously positive, and humble soul I have ever seen in anyone, and I’m not just saying this because he’s my brother. And he’s not only my brother, he’s my best friend, and without him or his unique personality, this family would not be complete. So many people love and value him, not because of his computer genius, but because of who he is as a person. And this is why now, more than ever, we need your help. Keep reading because this is a story not everybody knows.
At age 14, my brother found out that he had kidney disease. With stabbing pains and urinating blood as his symptoms, our mother had to take him straight to the emergency room, where many tests were run and the doctors finally diagnosed him with Iga Nephropathy, or Berger’s Disease, a kidney disease that attacks his immune system and slowly deteriorates his kidneys, unless of course it is controlled. This disease was controlled for the past 16 years with heavy steroids and medications with many side effects, such as swelling, high blood pressure, and fatigue. He found that nutrition can control it as well, so he took that route along the way and was actually able to get off his medications for many years. The doctors couldn’t believe how normal his kidney function was.
Yet, not that long ago, Chris had to go on steroids once again as symptoms of his disease returned, combating possible kidney failure. After a biopsy, it turns out 17 out of his 22 filters in his kidneys are scarred, and they needed to try and attack the problem right away. But, a few weeks into the treatment, we started seeing my brother out of energy, lethargic, constantly sleeping on the couch, barely speaking. And anyone who knows Chris knows that’s not him. His blood pressure started shooting through the roof, and we were more than worried.
I took him straight to the emergency room, and they found that the medication that had always worked for him in the past stopped working for him. He went into kidney failure, and they told me that if I would’ve waited 24 hours, the combination of his high blood pressure and the toxicity levels in his body would have killed him. It was too scary for words.
But, now that they had stabilized him, they needed to find another way. After more tests, they came to the conclusion that now at 30, he is definitely going to need a kidney transplant, starting dialysis right away in the meantime.
Now, he’s been on dialysis 3 times a week since he got out of the hospital, and we are still without a donor for his transplant.