Funding specialist medical treatment to give me some relief

Hi, my name is Alice. I got sick 6 years ago and have been in constant pain ever since. My current diagnoses include hypermobile Ehlers Danlos syndrome (eds), Myalgic Encephalomyelitis (ME), Fibromyalgia and Functional Neurological Disorder (FND) .

The issues started in 2018, when I was serving as a volunteer missionary for my church in italy, and I caught a virus that triggered a cascade of mess in my body, triggering the progression of genetic and autoimmune diseases. Over the years these conditions have worsened, I am now rarely able to leave my bed and need a wheelchair to mobilise outside.

I have always tried to be a giver, sharing music and artwork, caring for the sick, working with charities and looking out for other people. Asking for help is very hard for me but I find myself needing to do so.

Ehlers Danlos syndrome can manifest in many different ways, combined with my other conditions I suffer hundreds of subluxations and dislocations to my joins, heart and GI problems, relentless pain and fatigue, unconscious episodes and convulsions.

Among all of this my most relentless symptom is a constant battering headache that has not stopped for even a second in these 6 years. This has prevented me from being able to drive, go out independently, think clearly, read and causes nausea and fainting. We now believe this headache is cased by cranial cervical instability, a common problem of EDS. Having seen dozens of neurologists and pain doctors under the NHS I have been left without any hope of relief. They simply do not have the expertise needed to treat me.

I have however now found a treatment centre that is hopeful that they can offer me effective treatment. Through prolotherapy and proloxone therapy they can stimulate the damaged tissues in the area of my cervical spine to regenerate and heal, giving me hope of relief.

This therapy is highly specialist and expensive. It is not available through the nhs. So I find myself having hope of some relief from relentless pain, but being too sick to work, I have no choice but to ask for help.

I am asking for any donations towards this therapy.

I am also looking for ways to sell original art prints and would also be happy to take commissions for paintings and requests for songs in aid of raising these funds for the treatment that I am in need of to regain some quality of life.

Thank you for reading my story if you've got this far. Please get to know me further through my website.

www.alicerose.productions