My name is Kelly, and I turned 49 in October of 2020. It was around this time that my body started showing distinct signs of a neurological disorder. After navigating the medical system to get to a neurologist, she has noted "this appears to be a difficult diagnosis," leading to where I am now: in the midst of a long list of tests trying to rule out any and all possibilities. Unfortunately, ALS is seeming likely, as we have not been able to find any other cause and ALS is diagnosed by first ruling out all other potential causes.
I've had to quit my jobs as a self employed animal caretaker and vet tech assistant, leaving my only income from SDI (temporary so far). I can no longer drive and have to use a walker to get around in my house; with the way this is progressing, I'll be in a wheelchair soon and will need more and more help with personal care.  This has all happened in a matter of 6-7 months and I was only just recently approved for MediCal coverage to start in April, thus depleting all my savings with the multiple tests and doctor's visits. 


With my continued decline and an expected ALS diagnosis, my goal is to move closer to my daughter and her family in central California, as well as see specialists that my insurance can't or won't cover in order to get a diagnosis and care.


Any contribution, big or small, will be helpful in obtaining housing near my daughter (300 miles away), additional supports as I need them (wheelchair, ramps, etc.), and ensure timely testing and appointments with specialists so I can get a diagnosis.

Thank you!