Medical Treatments for Alex Morgan

Hi, My name is Megan Townes and I am wanting to help raise funds to cover medical treatment for a young lady that I have come to know and love. I first crossed paths with Alex several years ago at one of the weekly Miracle League games. I just watched in amazement as this little girl went up to bat while balancing on one leg (not using the tee) and proceeded to hit the ball and hop on that one leg all the way around the bases to home. Obviously, this made quite an impression on me. Years later, my daughter was taking dance lessons at Sozo Dance Academy and who do we wind up meeting other than that little girl (now with a prosthetic leg) in the new Adaptive Dance Class that her mom and sister were starting! My daughter has spent the last year dancing beside Alex, following her in dance steps and determination. Alex is just as kind and gentle as she is determined and spending this past year getting to know her and watching her dance has been a privilege. Our family has been blessed in knowing Alex and her family and we want nothing more than to help bless them in return. I know we likely aren't the only ones who have been impacted by the Morgan family, and therefore I wanted to create this Go Fund Me to allow others to help us make an impact on Alex in return.

Alex is 11 years old and has a rare disease called Gorham-Stout Disease or GSD. It has also been referred to as Vanishing Bone Disease. She was diagnosed at age 4 and has been through many different treatment options through different medical doctors, research hospitals, and holistic options. In 2021, she underwent a rotation plasty amputation that has given her much more mobility than she had prior. Her disease seemed to be stable for several years but her most recent scans show it is activating in her body in new areas. We have been prayerfully considering options, speaking with specialists at Vanderbilt and alternative doctors. We believe the right option for her now is a treatment that combines a more natural approach with a medical approach. The challenge is that insurance will not cover any part of this treatment. We expect the cost to be around $2500 per month for 1-2 years. The doctor will have imaging done approximately every three months to check on progress and we will stop the treatment if it is not working for her after the trial period. Due to the research that has been done on her disease and the treatment this doctor uses there is reason to believe this could be a good option for her. Please pray with us for healing for Alex and give toward this treatment plan if you are able.