Asking for your help is the hardest thing I’ve ever done. But we’re at a financial crossroad, and the generosity of our friends will determine how we move forward. Your contributions to Kelly will offset the cost of her needs that are not covered by Medicare. You’ll provide her mobility. You’ll reduce her pain. And you’ll be a party of our family, as we simply can’t do this alone.
For those that don’t know the complete story, here it is. My wife Kelly is a fantastic, creative person. She has been diagnosed with several painful and debilitating genetic disorders: Ehlers Danlos, Dysautonomia, Mastocytosis, Sjogrens Syndrome and Epilepsy. These diseases affect her entire body in a variety of ways on a daily basis. She has suffered multiple complications with her heart that continue to affect her. Her muscles are in constant pain and leave her struggling with her mobility.
Kelly spent her entire life in creative pursuit She took her creativity into the field of film and television first as an extra and later as a Make-up artist on such projects as E.R., NCSI: Los Angles Unit, True Blood, Thor 2, Nightmare on Elm Street (reboot), Resident Evil, Chocolate News, Whats Up Rockers, and many others.
Kelly was also an avid roller skater -- and hopes to be again. Moonlight Rollerway and World on Wheels are her stomping grounds. (In fact it was her roller skating that first grabbed my attention. Cuz Moonlight was my first roller rink.)
Kelly is an involved mother of twin boys. She has imparted her lust for the creative upon them. They are both hilariously devoted to D&D and fantasy fiction.
Kelly’s life has been filled with many health struggles. She suffered a heart attack at 17. In her 30s, shortly after her boys her born, she beat adenoid cystic carcinoma. Later, she beat it a second time. In-between these, she had full retinal detachment, recovering 40% of her vision in her left eye and unable to see out of her right eye. During this time she continued to work, care for her kids, and left her abusive ex-husband.
In 2015 Kelly had a succession of illness and injury that led to CRPD, a painful nerve disorder, and a flare up that immobilized her for several months. Even the lightest touch of a blanket could harm her. The immobilization caused atrophy and further pain in her muscles.
For years we have been going to doctors to diagnose what was happening to her. Because up until this flare, Kelly did not know that all her health issues were related. She spent the bulk of her life undiagnosed with any genetic disorders.
The first year was a unending struggle to find doctors that would listen and take her conditions seriously. Many said that her chronic pain and illness was all in her head. Meanwhile, Kelly got to researching her symptoms and trying to figure out what was wrong with her. Which led her to a team of doctors and specialists at UCLA, Cedars, and Good Samaritan who are now taking good care of her.
Unfortunately, the chronic pain and illness has sidelined her career in FX and beauty make-up. She has been a long standing member of Local 706. But recently, due to her disability, she has had to honorably withdrawal from the union. This was a heart-breaking moment for Kelly. Since she became disabled, we have had to rely on my income and credit to cover additional costs associated with being sick. As a single-income family, this has been a struggle from year to year. But we focus every day on moving forward.
Late in 2015 and early 2016 Kelly entered into the aquatic program at the Brown Center of CSUN, to regain her strength and coordination. Every day is a battle for Kelly to stay as healthy as possible and to keep her pain down. The Brown Center is an important factor in this. Sept 2018, she will be starting up at the Brown Center again, to keep her muscles for deterioration.
Some days Kelly is able to walk unaided, but not for very long periods of time. Other days, with a cane she can do fine. But when we go out of the house for extended periods of time, it important for her to have a motorized mobility devices, such as chairs and scooter. Thanks to the kind donation of a friend, Kelly has a scooter now. The scooter is great for short trips around the neighborhood or grocery store, but some situations require something that is more compact and versatile, such as when she has to get herself to the Brown Center or attend functions at her twin’s school.
When I am on tour working, Kelly needs to be able to get around independently. Because of that, we recently had to use our credit card to purchase her a motorized wheelchair. Mobility devices like this are not covered by her Medicare and can be quite cost prohibitive.
We are asking for help to pay for Kelly's chair and Brown Center Therapies. It is important that she continues to stay as active and healthy as possible. It keeps her muscles from atrophying, helps her body to stay healthier, and her pain levels to stay manageable.
Kelly’s chronic illness is a life long struggle, and we appreciate any help that you might be able to contribute.
Our goal is to raise $3000, and any money raised above that, will pay for future medical needs. Of the $3000, $2500 will be used to pay off the chair, and $500 will be used to pay for the Brown Center this fall.
Thank you in advance for your generosity.
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