Fund Jessica’s Life Saving Journey

HELP SAVE JESSICA’S LIFE 

Thank you for taking the time to visit the GoFundMe page for Jessica Davis.  

Jessica has been diagnosed with three hereditary genetic disorders:  hypermobile Ehlers Danlos Syndrome (hEDS), Hypokalemic Periodic Paralysis (HYPOKPP), and Hereditary Angioedema.  In the last two years the Hereditary Angioedema type 3 (HAE) has become increasingly life-threatening. 

At this time she cannot stand or walk for more than 15 minutes without debilitating fatigue, cardiovascular and circulatory issues that cause dangerous fainting spells, and the stress on her system always has the potential to trigger another HAE or HYPOKPP attack.

To our great relief, Jessica has been accepted to the US HAEA Angioedema Center at UC San Diego, California, where they provide patients with angioedema, state-of-the-art diagnostic testing, the latest available therapeutic modalities, a full range of patient support programs, and cutting-edge translational research in angioedema. 

 Jessica needs to travel to California on January 26th and 27th 2023 to meet with the nation's leading immunologists treating patients with HAE type 3. There is hope. But the journey is not over yet. 

 Any help you can provide — in the form of a social media share, a prayer, or a donation in any amount — would be met with much gratitude. The money received here, in this GoFundMe account, will go toward plane tickets, lodging and meals on 12/26 and 12/27. Alternately, you may also send a PayPal donation to @phantomraedesigns if you’d like to make a larger donation to Jessica’s healthcare that is free of fees (GoFundMe takes a small fee in exchange for their free service). 

 Jessica is my sister. She is an artist, a mother of 3 children with special needs, an army wife, an aunt, a cousin, a friend, and she has always been a fighter. 

 Thank you so much for your help and support!! 

 Yours in love, and never giving up in this fight, Shelby

 /// **KEEP READING IF YOU WANT TO KNOW MORE ABOUT (HAE) and JESSICA**

 Hereditary Angioedema type 3 (HAE) causes recurring episodes of severe swelling that become life-threatening when they affect the airways. Over 10 years ago, after Jessica’s first pregnancy, the angioedema attacks started. Only 4 years later, they started affecting her airway, which meant requiring frequent hospital visits to monitor her while in acute crisis and to prevent asphyxiation. 

 HAE type 3, or unspecified type, is not fully understood. Jessica's case is particularly complex and challenging for her doctors because she has two other genetic conditions affecting her body, hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypokalemic Periodic Paralysis (HYPOKPP). 

 Jessica’s case continues to concern her top-notch Neurologist from Mayo Clinic, Wisconsin. He helped her reach a breakthrough by finally identifying and diagnosing HAE type 3 in 2021. Yet effective treatment for her case has not been established and she is increasingly experiencing menacing attacks that affect her airways. He has reached out to the US HAEA Angioedema Center at UC San Diego, California, where they provide patients with angioedema, state-of-the-art diagnostic testing, the latest available therapeutic modalities, a full range of patient support programs, and cutting-edge translational research in angioedema. 

 Jessica has been a champion for me my entire life. She has been by my side and has had remarkable clarity about what I needed in my hardest moments. It is my hope that, through this GoFundMe I can help create a path for Jessica to seek and receive the care that she desperately needs to reduce or end these life-threatening HAE attacks.

Rucunest infusion

Takhzyro / Sajazar