He entered the NICU the day he was born and, shortly after, he was diagnosed with pulmonary hypertension. After spending some time at Children’s Hospital of Wisconsin, the doctors recommended a lung biopsy to rule out the possibility of Dean having Alveolar Capillary Dysplasia or ACD.
In November Dean was formally diagnosed with ACD.
ACD has only been diagnosed a hundred or so times, and it is fatal. Children with ACD typically do not survive with the disease, usually passing away within days after birth. In the extremely rare case that a child with ACD does defy the odds, the only option for survival is a lung transplant.
In May, Dean and his mom were transported to the Children's Hospital of Philadelphia, and in June, we all received the news we had been waiting for: Dean was added to the lung transplant list! As he awaited his new lungs, the doctors and nurses at Children’s Hospital of Philadelphia worked tirelessly to keep his health stable.
Dean has always been a strong little boy. In the 11 short months of his life, he continued to fight off ACD, survived three brain operations to combat the Hydrocephalus he had also been diagnosed with and smiled through it all. With his big cheeks and beautiful blue eyes, Dean was a ray of sunshine, and by the way he acted, you would never know there was something wrong with him or that he had endured so much in such a short time.
On Thursday, July 27th, 2017, Dean Jesse Grant passed away from heart failure and was welcomed with warm embraces by his fellow ACD angels.
Please consider donating to help with medical bills, final expenses for Dean, and moving expenses for Dean's parents who moved to Philadelphia from Milwaukee, Wisconsin to be with their boy.
Dean strength and smiles have touched many lives in his short time here on Earth, and he will never be forgotten.
- Steven Groetken
- Anthony Mandella
Organizer and beneficiary
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