Connor's Accessiblity!

Hey I'm Kayla & I'm Connor's Mom.

This is our family,

Connor was diagnosed with Duchenne Muscular Dystrophy officially in May of 2024 after seeking diagnosis for some time.

While being newer to this diagnosis, he's not new to the struggles that come with disability & neurodivergency.

We want life to be as accessible as possible for Connor!

As well as let him maintain & grow independence.

Donations are currently going towards a handicapped-accessible van for this sweet space, blues clues loving 5 year old boy.

*Added-

We're currently working with a wonderful non-profit called MY DMD HERO that will be putting in our wheelchair ramp;

To make sure he can get in & out of the house himself independently.

We won't have to struggle anymore getting his current mobility devices out, up & down the steps!

*Connor is getting a custom manual wheelchair with a power attachment made, as he uses a loner practice manual chair right now!

We want him to get out of the stroller & have independence!!

We strongly believe self propelled mobility no matter the age is best!

We want to be prepared for whatever the future holds as his mobility declines, as Duchenne is a progressive illness.

Grants only go so far, we want to try to provide our own gap funding.

Thanks so much for helping us!

(Connor pictured, getting Elevidys gene therapy)

With me being disabled, (having Epilepsy & other chronic issues), it can make the financial strain of a another family member having a disability a bit more difficult at times, than it might be in another household.

My partner Dustin not only has to be a father to our sons Colton & Connor, but a full-time caregiver to Connor and myself and can not work full-time any longer.

Unfortunately Colton (big brother) is undergoing his own diagnosis journey aswell, unrelated to DMD.

Dustin is working hard in physical therapy & on a health journey to not just fix a back injury & be okay, but to hold it all together.

As difficult as it is to reach out for help, I know there is a community out there I have already found in the DMD world (as well as my community ) who have assured me WE can do this.

I cannot thank you guys enough.

Without you, & all of your support I wouldn't have the courage to ask for help.

Again,

Thank you so much.

For anyone who would like to read more about Duchenne muscular dystrophy you can go to;

https://www.parentprojectmd.org/about-duchenne/what-is-duchenne/

Feel free to share this fundraiser across platforms, or look up some of our videos on DMD awareness & boost Connor's fundraisers by finding me on any socials!

Find me at-

https://msha.ke/kay_disabilityvisability94

Red balloons for DMD awareness

Shamrocks for Muscular Dystrophy Awareness!