Hi,

My name is Brooke Sant. I am fundraising for some dear friends of our family. These beautiful people are the Sorenson’s.

Megan and Jon have both struggled plenty in their lives and worked hard to beat the odds. Their love story is beautiful. Once they were married they wanted nothing more than to start their family. Unfortunately, Megan has Lupus and endometriosis. Their struggle to conceive came at great expense, but they managed to have two beautiful children.

Jon had a stroke in his teenage years that led to him having epilepsy. He was able to work and was a good provider. Megan worked as well at a group home for wards of the state. Jon’s health got progressively worse, and he started having grand mal seizures regularly. An MRI shows severe brain damage to the dominant side of his brain. The doctors expected him to lose all motor function, but he doesn't give up so easily. He's a walking miracle... with lots of complications. Jon was unable to work and was hospitalized for long periods of time. It became clear that Jon needed brain surgery.

Posted by Megan May 7th, 2019 on her personal page:

“Unfortunately as stated briefly before nothing has gone as planned or anything that was expected by the surgeon and other doctors. What was communicated to us has now been a direct quote from the neurosurgeon today and the other neurologists. Unfortunately Jon’s situation is the worst case scenario and the options we have been given is deciding which we think is less worse than the other. We were not prepared for this in any way. It will be something that will change our lives long term, forever here on earth, and we had so much hope and actually never considered having these as options. We are beyond exhausted and I do not have the physical or emotional energy at the time to explain to really anyone much of what is going on or had been or will be… Just please keep Jon in your prayers some more. He needs it now more than ever. This came as a big shock to both of us, and neither of us were prepared at all. In fact, Jon’s team of doctors were even shocked. No one was prepared for anything like this. It’s been the story of this week; the crazy complications that haven’t been expected to happen, but it has managed to happen all week. So please, I know we have had many thinking of us but we’ve never needed it more than we do now. Nothing is the same and unfortunately this will change so much of our entire lives forever. I’ve literally almost managed to keep myself awake every hour for over a week because just when I think things have calmed down something bad happens. Thanks for all the support. I hope I can get more info out soon. It is important that we do this as authentically as possible, and safely as well. The most important part is keeping Jon the priority, the number one, safe, supported and so much more. Thanks for baring with me through this post and please, please pray for Jon not just his next surgery, but a lifetime of complications that we never anticipated or expected. It’s easy to feel lost and a lot of things, but I know as long as we have Olivia, Jon, and I-we are ready to give it all we can! Bring it on!”

Four and a half years and seven brain surgeries later, Jon continues to seize almost daily. The novelty has worn off and much of the emotional support they had received has nearly disappeared. (if you are one of the heroes who is still there, please don’t take offense at that statement.) They are left in a situation where no one in the home can work. Megan tried working from home, but Jon had several accidents because she was focused on her job. He fractured portions of his spine and ribs. His health wasn't worth the risk. Megan is taking care of Jon and their baby girl, but their bills have added up over the years.

Megan is a rock star! She has held down the fort and done all that she can and more to stay afloat. She started having pain in her face. It got really severe. The dentist said that she needed 4 root canals. When that didn’t work, she pulled a tooth. Nothing brought relief. It was scary. The pain was so severe that she went to the ER a couple of times. Finally she was diagnosed with Trigeminal Neuralgia. If you don’t know what it is, look it up. It is terrible. Incapacitating chronic pain in your face that can hit you at any given time. The painful nerve signals cluster for the rest of your life. There are treatments (surgery), but on top of everything else it is daunting.

Their cute little baby has chronic ear infections and giant adenoids that have led to her having pneumonia multiple times. She’s had to have really potent antibiotic shots, and they are scheduled for tubes and adenoids out soon. Their sweet older daughter had to go to Primary Children’s to deal with a condition that she was born with. I won’t go into it, but it’s a huge time commitment on Megan’s end, and very uncomfortable and scary for their daughter. She may need surgery in six months as well if this daily routine doesn’t solve the problem.

Their past medical bills have added up, gone to collections and trial, and now there are liens on their home exceeding $17,000.00. They have been so busy trying to stay afloat and putting out fire after fire that they truly can’t even look at it. A lawyer told them that if anyone holding a lien comes to their home, they can take their car and give them 2 weeks to get out of the house and they will lose their home.

These people are amazing. I feel like this is more than any one family can handle. Let’s come together as a community and lift them up. Let’s be the difference that we all so desperately want to see.

Thank you for taking the time to read this. Please help if you are able.

Sincerely,

Brooke Sant