Frost Family ALS Support

Hello, Ian here. Sara has made a couple posts about what we’ve been going through with my condition, and here I am with an update.

As you may have heard, I have been diagnosed with ALS, which means that my brain is slowly forgetting how to talk to my body. Lou Gehrig had this disease for 2 years, and Stephen Hawking had it for many years; I Already Land Somewhere between them.

If I were to describe the particulars of my day-to-day it would sound more bleak than how I experience it. The truth is I was never promised A Long Story, and I’m more grateful now for what time I get to spend with my wife and kids. Each day is an adventure, filled with uncertainty and opportunity.

Though my disease is progressing slowly, within the past seven months I started walking with a cane for A Little Stability, and more recently I switched to using a walker out of the house. Even with these aids I have fallen four times, two of which resulted in concussions. The reality is that sooner or later it will be unsafe for me to access any bedroom or shower in my home, as they are all up A Lotta Stairs. I expect that soon thereafter I will be increasingly reliant on a motorized wheelchair. We’ve explored our options and have determined adding a bedroom and shower downstairs is the least disruptive path to A Long-term Solution.

Similarly, within the coming months and years we will need to buy a wheelchair accessible van, other adaptive equipment, and prepare for the future as best we can.

This campaign is to help meet these pending expenses. Please contribute what you can and share this page.

All Love and Sincerity,

Ian Frost