Meet Fenn

Fenn is a bright, resilient 6-year-old boy who has faced more challenges in his young life than most of us will in a lifetime. He was born with an ultra-rare genetic disorder called WARS2, which affects his muscles, coordination, balance, and overall development. There are only 30 documented cases of WARS2 in the world, and every child experiences it differently.

For Fenn, this means:

He has low muscle tone and difficulty walking without assistance.

He wears orthotic braces daily and works hard in therapy to gain strength and mobility.

He is non-verbal, and also has a degenerating cerebellum.

Why We’re Fundraising

We’re raising funds to help Fenn take his next step—literally and figuratively—by securing a professionally trained mobility and stability service dog. This dog will be specially matched to Fenn and trained to:

Provide physical support and stability while walking.

Assist in preventing dangerous falls.

Offer emotional comfort in overwhelming or unfamiliar situations.

We’ve already been approved to start the process, and now we need help covering the cost of training, travel, and care—estimated at $25,000–$30,000.

What Else Your Donation Supports

In addition to the service dog, donations will help cover:

Ongoing medical costs not covered by insurance (specialist visits, therapies, adaptive equipment).

Assistive technology (such as communication devices and motor skill tools).

Travel to medical appointments across state lines.

Why Your Help Matters

Fenn works so hard every single day. He’s determined, joyful, and tougher than most grown-ups. But he shouldn’t have to fight alone. A mobility dog will open up more of the world for him and give him the chance to move through life with greater safety, independence, and confidence.

Whether you give $5 or $500, every dollar brings us closer to helping Fenn walk more securely and live more freely. And if you can’t give, sharing this campaign means the world to us.

From our family to yours—thank you for loving Fenn and helping us give him the tools he needs to thrive.

With love and gratitude,

The Koso Family