Frankie-Fest

This fundraiser is all in Frankie’s memory!!

My son Frankie was diagnosed with SMA. A condition that is very rare.

Frankie was cruelly taken from us 10 years ago this August and to help and support the charity that does so much work for the condition that took him, we have decided to hold a family fundraiser in Frankie’s memory.

Myself, and Uncle Dan have arranged a fun day to celebrate Frankie’s life and help support others that are experiencing life with SMA.

We would appreciate any donations as small or large as you can afford. All proceeds will go straight to the charity and help in their research into SMA and help support other families through their own challenges with SMA.

Hope you can make Frankie-Fest and support us with this.

Krysti / Mummy

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Do you want to join me in making a difference? I'm raising money in aid of Spinal Muscular Atrophy UK and every donation will help. Thank you in advance for your contribution to this cause that means so much to me.

More information about Spinal Muscular Atrophy UK: We will work tirelessly to raise awareness of SMA, to be a leading advocate for individuals and families and to ensure timely access to diagnosis, effective treatment and best management for all affected by SMA. We will listen to and support our community to make informed choices and will bring together skills, knowledge and resources in the UK and beyond, in our quest to optimise the future lives of all affected by SMA.