Fragile x effects

Judd is 13 and has autism adhd and most importantly fragile x syndrome ... I am Judds mother and his full time carer. The older he gets the more help he needs ... the issues become greater ... The mental health and physical health aspects become even more exemplified. 

Judd has recently been diagnosed with clonic tonic epilepsy which has been traumatic and exhausting for both of us ... we are currently trailing a range of medication to find a formula that works best for him.
His epileptic seizure range from 5 per 24 hours to 12 per 24 hours. He loses bladder and bowel control during them.
we have managed to buy him a tricycles and get our floors done (wee and poop damage...tmi)
we have also managed to get him his regular meds and specialist visits from all of your generosity and kindness ... 
now we just need to get him a hospital grade mattress and sensory monitor.

please help make our lives a bit easier xx