For Your Information

My name is Jeanine. Im 38, married, have a wonderful 20 year old stepson, and the most beautiful, magical, 6 year old daughter on earth. I was lucky enough to be gifted with the best husband and father ever in my spouse. We also have settled in the home of our dreams, and find endless joy caring for it. We work, love working hard together, and devote our energies to our beautiful children. I also have metastasized brain, lymph and spinal fluid cancer, returning after invasive breast cancer last year. Its Triple Negative, and Non BRCA responsive, so my treatment options and success rate is severely limited. I'm in my fourth round of chemotherapy, along with radiation on my brain and in my armpit. I'm also in my first cancer study for chemotherapy. I'm sharing my story. I like showing it off, and using it to teach others about cancer, medicine, insurance, my own experiences, and various other topics I hope are of benefit. While I am scared, overwhelmed, and intimidated by what I have to face, I enjoy putting it before an audience, and making cancer - and illness in general - a little less ugly for all of us. My first financial goal for this campaign is to cover my out of pocket annual costs. Currently it's 3-6 thousand dollars annually. I have debt still remaining from my treatments last year that needs to be paid as well in excess of $2,000.00. My second financial goal is to amass funds enough to pay future costs. WHEN we are successful with my treatments, I will still need expensive scans every few months. I'll need $3,000 minimum annually to cover those expenses as well, plus any other costs, should I need maintenance medicines to treat lingering side effects.  At this time, an immunotherapy has just been released that treats Triple Negative breast cancer. This treatment currently doubles the life expectancy of triple negative cancer patients, potentially gifting me with a decade of more life with my family and daughter. If I am able to receive this treatment, I would have to take it for the rest of my life - at least ten years of full expense.  My next goal is to amass funds for lack of success - the third level of treatment. After this chemo, I would then be eligible for some additional studies or clinical trials, if the brain cancer stays away. These will be expensive, and may require travel. This would be burdensome on me and my family, and I need to prepare for it. I would also be responsible for the full cost of any treatments I receive outside the US.  My next goal for this campaign is also something I hope to avoid. I want to have funds enough that if I reach end stage cancer, I can be made comfortable and cared for without costing my family, or them suffering my loss of income. My husband is my caretaker, and my daughter is my star. If I end up needing hospice, I want their lives uninterrupted, and as supported as I would give them. This would be a luxury, because it would afford them the opportunity to be with me in my final hours, instead of worrying about work and expenses, or my discomfort. It would also buy me as much time as I can with them before I have to go. My next goal for this campaign is to fund enough of a balance with this and my own money and skills to be able to create some enriching events and activities for my family in the time I'm treated, or have left. We don't have much desire for travel or major expenses; we've always been conservative with our wishes, but id like to take my daughter to see the princesses at Disney, take my family to visit friends, get my daughter her puppy in a few months, and renew my vows with my husband. Id love to go on a hot air balloon ride, and a few other things. They're little things, simple, cheap, and silly. Some I'm already doing and paying for, but I don't know how much time we have left to do them. My ultimate and final goal for this campaign is to replace my life insurance. Due to my cancer diagnosis, I am no longer insurable in the open market. The life insurance I have through my work is my only coverage. If I am unable to work, I will lose this coverage, and my family will lose their ability to protect our home and assets. My husband and I worked very hard to turn a cheap, foreclosed property into a home most people would dream about, and its all my daughter has ever known. I want to secure it for them for the rest of their hopefully very long and happy lives.  My last goal is to have sufficient funds remaining to fund a voluntary mastectomy for my daughter, so she can afford one if she decides it's right for her. This would be a savings balance for her of $10-25k. Voluntary, preventative procedures in this country are still cost prohibitive, and tend to be paid for out of pocket by the patient. I will not have her experience this fear, this pain and suffering, and this mutilation, if I can possibly help it. If its possible for her to get a mastectomy and/or hysterectomy after shes done having children, or decided she doesn't want children, the last thing I want her to worry about is the cost. After all, its cost me $9,000.00 to have cancer so far. Its worth $10,000.00 for her to not.  If I am able to go into remission, and resolve this disease, if we are successful, if we are able to come out in the "Not zero" percent, I will use these funds to pay my costs, pay our debt, and assist other patients like me directly with their costs. I will also buy some supplies and gifts for my infusion lab. Things like hand fans, blankets, costumes, treats, a decent coffee machine, penlights and supplies for the nurses, all make treatment just a LITTLE bit more successful. Id also love to go through and pay the outstanding balance on everyone's bills with them in the lab. These payments go towards my lab's success, and I want everyone in there to feel this benefit.  What I've learned from all this so far, is that: 1. Everyone needs to buy private life insurance while they're young and healthy. 2. Everyone needs,to buy private disability insurance when they're young and healthy. 3. Long term illness isn't something to feel bad about. It's difficult, painful, sometimes insurmountable. It can make you feel horrendous, hideous, and inhuman. It is not, however, a life changer. It might shorten your life, alter your life style, or even end your life. But it doesn't have to change it utterly. YOU make what that life is. Your activity, your best effort, your health and maintenance, your enrichment and energy, are what make you You. Illness only takes what you give it. I'm giving this illness my raucous crowd energy, and a shit-ton of glitter. Please help me as I try to make this disease less difficult, and this life worth living.

Donations (0)

  • Mink Stole 
    • $32 
    • 1 mo
  • Anonymous 
    • $13 
    • 1 mo
  • Anonymous 
    • $20 
    • 1 mo
  • Maxie Gardner 
    • $50 
    • 5 mos
  • Madonna Buffa 
    • $20 
    • 5 mos

Organizer 

Jeanine Cohoon 
Organizer
Wright City, MO
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