Dear world, my name is Vanja and I was born on 13.05.2021 in Belgrade. I was born as a healthy baby but during the first month of my life my mum noticed that I am sleeping longer than my brother at the same age. My movements were slower and I could not move my arms and legs. Even health professionals were concerned about my early progress us a baby. After all the tests had been taken I was diagnosed with a rare and lethal neuromuscular disease called Spinal Muscular Atrophy Type.
I received a drug called Spinraza that is available in Serbia and this medication should stop the development of my illness. But my only chance for progress and recovery is treatment abroad. This treatment (Zolgensma) costs $2.1 million dollars and a trip to Hungary to receive it. At the moment, time is not working in my favour, this medication should be received up to the weight of 12 kilos and I am already 7 kilos. Also I am not well at the minute; I have a high temperature which could be more fatal to my lungs. My Mum and Dad do not have the money and they are struggling to raise that amount, so I am asking all kind people to help us. I would like to get well and have a good childhood with my parents and my brother Vuk. Thank you for your generosity.