For The Love of Charlie Mae
My my name is Cherie Hubbard. I am sending this out in hopes of helping my granddaughter, daughter and son-in-law. Thank you in advance for your help, sharing this page and or prayers!!
As some of you already know but most don’t, My beautiful 9 month old grand-baby Charlie Mae has a rare genetic disorder called Turner Syndrome. One of the complications of this disorder is heart defects. Charlie Mae has three major heart defects that need to be repaired. She will be having her first open-heart surgery on 10/22 to repair the most life threatening issue first. My daughter Brianna and her boyfriend Logan Hukill have been quarantined in their apartment for a month to prevent COVID and other illnesses that might delay her surgery. Charlie will remain in the hospital for up to two weeks (If no complications arise) with her parents at her side at all times. Once home they will all need to remain quarantined for up to a few months to prevent Charlie Mae from contracting COVID or other viral illnesses which could kill her.
I have done many many fundraisers over the years for people in need. I never imagined it would be my own family in need of help! I am asking my friends, family and anyone who is able, to please donate to help little Charlie Mae and her parents get through this difficult time without loosing everything. With your help they can stay in their home, not loose their car for missed payments, have food on the table and help pay the portion of Hospital expenses not covered by insurance. I realize not everyone is in a position to donate. If you can’t help then please share this post so others May be able to. In fact please share this post anyway! Please help sweet little Charlie Mae and her parents get through this most difficult time with less financial burden!
My daughter Brianna Freeman wanted to educate everyone on the illness her baby has. Thisis what she wrote:
12 days after my daughter was born she was diagnosed with a rare genetic disorder called Turner syndrome. Turner syndrome is a chromosomal disorder that results when one of the two sex chromosomes is missing or incomplete. TS can not be passed down by either parent, it is completely random and happens at conception. It is a treatable but non curable condition that can be characterized by short stature, loss of ovarian function, delayed physical development, and certain learning disabilities. TS also comes with a long list of health concerns which is why only 1% of girls with Turner Syndrome even survive to birth. Charlie is just like you or I but gets to say that she’s apart of this super cool exclusive group of girls. Charlie may be small but she is sure a fighter! We ask for you’re thoughts and prayers during this tough time but we know our girl will be just fine! #turnersydrome #turnersydromeawareness