Hello and thank you for taking time to read our story about my Angel, Mursy (D'Marus). We are fundraising to help Mursy get his medication that could prevent an invasive brain surgery or death due to severe seizures. My name is Tesa and I have 2 beautiful twin 13 year old boys. The twins, D'Marus (Mursy) and Domini'Q, were born at the exact same time, 04/18/03, at 27 weeks weighing only 2Ibs. A short while after they were born, D'Marus had a severe stroke which caused his brain to bleed on both sides and left him with severe special needs and medically fragile. It was a long 4 months in the NICU. His condition includes Hydrocephules, Cerebral Palsy and Epilepsy to name a few. He has under gone over 10 brain surgeries including several other surgeries. Hes also on Pediatric Home Hospice Care.
Domini'Q has bad allergies with severe Asthma. He is much stronger than his brother and extremely helpful to me. He's the main reason Mursy is getting the help needs!
D'Marus, or Mursy, which is his nickname, is nonverbal and can not walk, he's fed through a G-Tube and barely sleeps through the night. He's on grocery bag full of pharmaceuticals for different needs. My goal is to get as much CBD Oil he needs to help him live more comfortably. as he continues his CBD treatments, his Neurologist can start to wean him off the other pharmaceuticals
The CBD Oil is expensive, but will help Mursy live! He has over 20 seizures in a day and his fragile body cant handle much more. This is our last chance God is or only hope. What ever you can help us with... THANK YOU!