For baby Emmett and the Dorman Family

Update: August 6th 2022

As many of you know, Kristin&Chad’s youngest son was diagnosed with epilepsy at just 2 months old. While they knew the challenges it could face, it never truly prepared them for the rollercoaster ride they are currently on. Emmett is on a fast and steady decline. Within the last two weeks, he went from walking, and smiling, to being unable to walk, sit up unassisted, and show any sort of emotion. He went from a little boy, to just existing. Emmett’s qualify of life is declining rapidly. The Dorman’s are at the mercy of the health care system, awaiting a surgery date. The costs of medication, out of town appointments, and many therapies are putting a strain on this family. If that isn’t enough, Kristin has yet to return back to work, (on leave without pay), as they are unable to secure any sort of childcare for Emmett. No one is giving this child a chance at such a crucial time of his life/development. It’s critical to raise money for this sweet boy, to give him the best possible chance at life. The desperation of parents to a sick child is unfathomable. Emmett’s has not had ONE seizure free day in 2022. The duration of Emmett’s seizures are longer, and worse, which takes a monumental toll on his brain and body. In order to keep Emmett’s seizures under FIFTEEN a day, he’s required to be on 3 very heavy narcotics, which results in Emmett being incredibly snowed from the medication dosage. Our hope is to raise enough money for this family to potentially seek out of country care, the sooner Emmett receives brain surgery, the better chance he has at living a life, (not without many, many hurdles). He will require a minimum 3 month post op rehab to even begin his journey where he will have to relearn everything he has ever learned. Please, share and donate, and help the Dorman’s see a little light at the end of this very long, dark tunnel.

Initial post: 

Chad and Kristins baby Emmett (3 months old) has been diagnosed with a neurological condition called “focal cortical dysplasia” with a left-sided thickened cortex. This has been causing him to have multiple seizures a day (up to 17 in one day). This diagnosis presents with so many challenges including seizure management but also entails a future associated with developmental delays, many therapists, and potential surgery (if deemed a surgical candidate), etc. Due to the nature of this condition and of the areas of the brain that are involved, neurologists state that it will likely affect his mobility, speech, and problem solving.  The family will have future out-of-town hospital admissions, and many expenses that will follow while navigating Emmetts medical conditions and future care, including taking time off of work. 
Please continue to hold them in your prayers and please consider donating to help assistthem!! 

Thank you all so much those who have contributed so far with both your kind words and donations! It is so heart warming for them to be able to understand how much support they have because they truly need it so much!!

#EmmettsArmy
*there is also a Facebook group created for updates and for people to share their support with the family, also that has recognized those who have donated thus far* search “For the Dorman Family”