Wee Jamie’s Journey

On March 30, 2022, our world fell apart when we heard the words no parent should ever have to hear—our son Jamie, at only just 3 years old, was diagnosed with Duchenne Muscular Dystrophy (DMD).

DMD is a cruel, degenerative muscle-wasting disease that affects every muscle in the body, including the heart, lungs, and brain. It primarily affects boys, and with no cure, the prognosis is devastating—most children with DMD lose their ability to walk between the ages of 8-10 and face a life expectancy of just their mid-20s.

No parent should have to watch their child’s body deteriorate before their eyes. But we refuse to accept this fate for Jamie. We will never stop fighting to give him the best chance at life.