On the 20th of April, my brother Mitchell and his wife Ashle received the devastating news that their eldest son, Flynn, who’s only lived a short 7 years has a cancerous tumour - epitheloid sarcoma on the side of his right hand. 

This particular type of sarcoma is extremely rare, and because it is rarely painful and typically only noticeable too late it’s rate of mortality is extremely high. The most successful treatment, known to cure this type of cancer is “wide Excision” of the tumour itself - so long as it has not spread. 

After numerous scans and a further biopsy and removal of one lymph node, Flynn’s surgeons and senior medical officers are confident that removal of his right pinky and ring finger and right side of his hand and wrist will save his life. 

This news is amazing, and gives us full hearts and hope that it was found, diagnosed and can be treated before it spreads further and are so thankful that he has been given the best case news and prognosis to be able to live a long, healthy and happy life.

But the removal of a fair portion of his predominant hand does not come without its own challenges, a minimum of a week long stay in hospital, ongoing rehabilitation depending on how well his hand heals and recovers and long term rehabilitation to ensure that he can learn to continue to use his first three fingers for as many or all of tasks that he might need throughout the future. He will also have to have frequent scans and visits to the hospital for further checks to ensure that thisaggressive cancer does not return - most likely until he is an adult and beyond. 

In addition to this, the cost of travelling (they live 45 minutes minimum from the hospital), accommodation, food, hospital parking and coordinating and supporting Flynn’s 2 younger siblings, Willow and Vincent as well as enabling Mitchell to continue to work as much as he can as the sole income earner of the family at present is front of mind as they embark on this pathway to a new normal. 

Any amount you might be able to contribute to help make meal times, travel, hospital and rehabilitation costs easier will gratefully received by this young and courageous family. Well wishes, love, positive thoughts and any other support you can provide will also help them on their way.  

As an Aunty, a parent, a family member, a friend, this shock news has really rocked us all, and so if you have made it this far into Flynn’s story make sure to hug those you love a little tighter today. 

As time goes on we will continue to provide updates on Flynn’s surgery and rehabilitation plan so that you can keep up to date with his progress.