
Florence Dunn
Hi I’m Phil, as many of you may know, my little niece sadly passed away from SUDEP in March 2023. Florence was a beautiful energetic and loving little warrior who sadly was battling everyday against a rare form of epilepsy called Dravet Syndrome. She is missed so much by all of our family and friends and in honour of my crazy little niece I am running the Brighton Marathon on the 7th April 2024.
I'm raising money in aid of Dravet Syndrome UK and every donation will help. Thank you in advance for your contribution to this cause that means so much to me.
More information about Dravet Syndrome UK: Dravet Syndrome UK is an independent UK charity formed in 2008 and is dedicated to improving the lives of the families who are affected by this catastrophic life limiting condition through our three aim:
- To support families affected by Dravet syndrome emotionally, practically and financially.
- To fund medical research into Dravet syndrome.
- To raise awareness and understanding of Dravet syndrome within the professional community.
Organizer
Philip Dunn
Organizer
England
Dravet Syndrome UK
Beneficiary