Kabuki Syndrome Awareness

Our child Lilly as with a few others in this world have what is called Kabuki Syndrome. Our daughter is 8 years old and will live with Kabuki the rest of her life. A few weeks ago a doctor at John Hopkins named Dr. Bjornsson has been doing research and has found a way to reverse the effects of Kabuki. With that Lilly is a perfect fit for what he is doing and would like to have Lilly in his studies, so we are trying to raise enough to get us there and back so that Lilly can take part in this awesome discovery...
If you would like to read the article put out by Dr. Br. Bjornsson click the link here..
http://www.eurekalert.org/pub_releases/2014-10/jhm-dti092514.php

If you would like to read more about Kabuki Syndrome click the links below...
http://kabukisyndrome.com/

http://www.sakks.org/


  • Susan Tefft 
    • $50 
    • 78 mos
  • Kurt Gleason 
    • $50 
    • 78 mos
  • Bobby Allen 
    • $25 
    • 78 mos
  • Michael Della-DeVoney 
    • $50 
    • 78 mos
  • Anonymous 
    • $50 
    • 78 mos
See all

Organizer

Kabuki Karnival 
Organizer
Mukwonago, WI
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