Finnan's flights to NIH in USA
Donation protected
Finnan has a rare disease called PMM2-CDG, which means that his body does not form proteins correctly. This affects every part of his body and he needs 24 hour care. There are only 700 CDG patients in the world.
There is no cure for CDG (Congenital Disorders of Glycosylation) but the National Institute of Health in the USA is running a research programme for CDG patients. If we can get to anywhere in the USA, the NIH will fund the rest, and Finnan's rare and important data will be used by medical researchers to work on finding treatments and a cure. Finnan is provisionally booked into the NIH for October, so we need to raise the funds by then. The week at NIH is full on busy, and we wish to take Finnan's older siblings, as well as mum and dad, to be cheerleaders for Finnan. Many many thanks!! CDG takes the lives of many children each year, so the more research we can do the better! Check out the new CDG UK charity website www.cdg-uk.org
There is no cure for CDG (Congenital Disorders of Glycosylation) but the National Institute of Health in the USA is running a research programme for CDG patients. If we can get to anywhere in the USA, the NIH will fund the rest, and Finnan's rare and important data will be used by medical researchers to work on finding treatments and a cure. Finnan is provisionally booked into the NIH for October, so we need to raise the funds by then. The week at NIH is full on busy, and we wish to take Finnan's older siblings, as well as mum and dad, to be cheerleaders for Finnan. Many many thanks!! CDG takes the lives of many children each year, so the more research we can do the better! Check out the new CDG UK charity website www.cdg-uk.org
Organizer
Julia Boonnak
Organizer