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Finding answers and doctors.

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Hello, my name is Walter and this is my Dino. He helps with my doctor stuff; I'm four years old. I was diagnosed with lymphocytic colitis in 2020. Lymphocytic colitis means I lose the most common protein in my body, making me sick easier and taking longer to recover. Unfortunately, there's no children's medicine. Hence, my GI doctor had to put me on medication for adults as my problem is usually only found in older people in their 60s and up. I've gained weight and started to grow throughout the last two years, but unfortunately, I was diagnosed with eplipsey and sleep apnea. My biggest medical problem now is I have stopped eating normal amounts of food and started losing weight again, my GI doctor has run out of ideas on what could be wrong, and he's hoping that when I have my surgery with the throat doctor he will take out my tonsils and adenoids and I might feel like eating normal again. As of right now, I'll be having a longer-lasting feeding tube placed in my tummy while the one in my nose comes out; NG tubes which is what is in my nose, are only supposed to be in a max of 6 weeks. I'm asking for your donations to alleviate some of the financial struggles of my mom and dad. They have been burrowing family member's cars and sometimes money to take me down to Denver and rent motel rooms. My dad is the sole provider at the moment and has taken time off to drive the 6 hours to my specialists at one point. We had to go down three times in six weeks for two or more days, and being able to stay at the Ronald McDonald's house is only allowed with specific steps are met which we never met, which means we paid for our rooms and food. My mom has been arranging doctor appointments, keeping the home in order, reaching out to different local groups for help like the crisis center and the ORR'S Hope foundation,
packing and selling off things that we don't need to help with the bills. There's so much uncertainty in what's going on with me. We are moving back in with my grandma to ease the financial stress on my parents, and now that the doctor isn't sure what to do, my parents are looking into new hospitals, medical uncertainty is stressful enough, and now the financial side of it continues to be looming off In the corner of how my parents will pay to take me to a new hospital burrowing cars and money.
Thank you all for your time and reading my story, and any donation you can make to help my family and me is a big help. Also, feel free to reach out to my dad or mom through email for further questions about my medical situation.
Thank you all again.
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    Organizer

    Dylan Deaver
    Organizer
    Buffalo, WY

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