Help find a cure for muscular degenerative Myopathy

Dear Friends, Family, and Kind Supporters,

We are reaching out with hope in our hearts and an urgent plea for help. Our beloved Colm Mohan has been diagnosed with GNE myopathy, a rare and debilitating genetic muscle disorder. This progressive condition gradually robs individuals of their ability to walk, move their arms, and live independently—all while their minds remain fully intact.

There is currently no cure.

But there is hope.

Promising gene therapy research by Genosera is underway—but it is critically underfunded. With your support, we can help accelerate the path toward a treatment—and possibly a cure.

Genosera is a pioneering gene therapy biotech company revolutionising how rare diseases are treated. Founded in 2019, its mission is to develop cutting-edge therapies for rare and hard-to-treat conditions. Even before Genosera was formed, its researchers had spent years searching for a cure for HIBM (another name for GNE myopathy). Today, they believe they are closer than ever. What’s more, this treatment could potentially benefit those suffering from other muscular and degenerative diseases, such as Duchenne muscular dystrophy, which affects children.

Every donation goes directly to the science that can make a real difference—not just for Colm, but for many others battling similar conditions.

If you know Colm, you know his strength, his warmth, and his unwavering positivity through years of challenges. The Genosera clinical trials may be his last chance to retain—or regain—his independence and quality of life.

Now, we have a chance to give back—to stand beside him in his fight.

Whether you can give €10 or €100, every euro makes a difference.

Genosera’s immediate goal is to raise €700,000 to move into the next stage of human trials. With your help, we can get there.

Please share this message with your network. Let’s rally around Colm—and help fund the breakthroughs that could transform his future and the futures of so many others.

With love, gratitude, and hope,

The Mohan Family