Final Resting for Baby Ansley Grace
Donation protected
In December of 2016, my sister, Kim found out she was pregnant with her first child. Kim was 18 and in her freshman year of college. The pregnancy came as a total surprise due to her being on the Depo-Provera shot and other protective measures were taken. There were a range of emotions felt: happy, scared, worried, blessed, nervous and excited; as the pregnancy was unexpected. Due to the fact that the baby was conceived under the Depo-Provera shot and there are a lot of known health risks and a black box warning attached to the drug, in February, a genetic test was done and came back abnormal and the doctors were concerned. For this reason, she was sent to Oklahoma University Children's Hospital in Oklahoma City for further testing. At that point, our worst fears were confirmed and the testing showed that Ansley Grace had multiple life threatening issues. Any one of them would be difficult alone but many were critical singly and when they combined them together they were exasperating. The Chief of Fetal and Maternal Medicine told us "Ansely Grace was not compatible with life." Kim's and our hearts were shattered in that moment. The pain that has ripped through our family is indescribable. At that point, they did an amniocentesis and sent it to three labs for cultures and testing. At the same time, they also started monthly blood draws and further genetic testing trying pin point and locate the cause of all her medical conditions. Or at least of the tesing would help any other babies or families if this happend to ever happens to them. Testing was done on Baby Ansley, Kim and Tray and every single test has come back "NORMAL". They have no idea what is causing this, the doctors say they haven't found a diagnosis yet, and that this may be something brand new and have never seen before or it could be Kim was "exposed" to something, ...maybe the shot.
The Doctors had originally said Ansley Grace may or may not make it to her due date, July 27, 2017 but we cherish every day and every moment we have with her, to feel her move and talk to her and play music for her and sing to her and she is loved far more than could ever be described in words. She has changed my sister and our family in a way I cannot describe in words, and if God takes her home before her date or even if we get a few minutes or hours with her, she will be by Jesus's side and still loved dearly and missed by us all.
Then things took a tragic turn on May 12, Kim began to have contractions and premature labor but she was only 29 wks. She went to OU Children's Hospital but she stabilized that night was allowed to go home, only to have her water break a wk later on May 19 and return to OU where now it is imminent of her birth and how long we will get to enjoy time with this precious angel Baby Ansley Grace is uncertain but that is where we are now. This has all happened so suddenly and Kim had no way to anticipate or plan for any of this and is completely overwhelmed. The tremendous cost of this all is way more than Kim or Tray have, we are asking family, friends, anyone please if you can help Kim and the family in any way to give Baby Ansley Grace a proper resting place and make the final arrangements at this extremely hard time, no matter how big or small the amount they would greatly appreciate it to help send her little girl to rest with Jesus. The money collected will be given to Kim and used for all costs related to transporting and preparing, arrangements, services, burial plot and medical bills for Baby Ansley Grace and Kim.
Baby Ansley Grace's conditions are:
Alobar Holoprosencephaly, Anacephaly, Midline Cleft Lip & Palate, Omphalocele, three (3) different hery Critical congenital heart diseases, CAVC-Complete Atrioventricular Canal Defect, DORV-Double Outlet Right Ventricle with Pulmonic Stenosis, DDL-Ductal-Dependant Lesions, and her heart is at a ninety degree angle facing up, and lastly Impeded Lung Growth.
Alobar Holoprosencephaly, this is the most severe form with no separation of the cerebral hemispheres. There is usually a single ventricle. The corpus callosum and interhemispheric fissure are absent, and the thalami are unseparated.
Anencephaly, this is a serious birth defect in which a baby is born without parts of the brain and skull. It is a type of neural tube defect (NTD). As the neural tube forms and closes, it helps form the baby’s brain and skull (upper part of the neural tube), spinal cord, and back bones (lower part of the neural tube). This happens if the upper part of the neural tube does not close all the way. This often results in a baby being born without the front part of the brain (forebrain) and the thinking and coordinating part of the brain (cerebrum). The remaining parts of the brain are often not covered by bone or skin.
Midline Cleft Lip & Palate, A cleft palate is an opening or split in the roof of the mouth that occurs when the tissue doesn't fuse together during development in the womb. Cleft palate often includes a split in the upper lip (cleft lip).
Omphalocele, (pronounced uhm-fa-lo-seal) is a birth defect of the abdominal (belly) wall. The infant’s intestines, liver, or other organs stick outside of the belly through the belly button. The organs are covered in a thin, nearly transparent sac that hardly ever is open or broken. Because some or all of the abdominal (belly) organs are outside of the body, babies born with an omphalocele can have other problems. The abdominal cavity, the space in the body that holds these organs, might not grow to its normal size. Also, infection is a concern, especially if the sac around the organs is broken. Sometimes, an organ might become pinched or twisted, and loss of blood flow might damage the organ.
CAVC, Complete Atrioventricular Canal Defect,
A large hole in center of the heart affecting all four chambers where they would normally be divided. When a heart is properly divided, the oxygen-rich blood from the lungs does not mix with the oxygen-poor blood from the body. A CAVC allows blood to mix and the chambers and valves to not properly route the blood to each station of circulation.
DORV, Double Outlet Right Ventricle with Pulmonic Stenosis,
(DORV) is a rare congenital heart defect, meaning it’s a condition a baby is born with. In DORV, the pulmonary artery and the aorta — the heart’s two major arteries — both connect to the right ventricle. In a normal heart, the pulmonary artery connects to the right ventricle, and the aorta connects to the left ventricle. DORV creates a problem because the right ventricle carries oxygen-poor blood, which then gets circulated in the body.
DDL, Ductile-Dependant Lesions,
Infants with ductal-dependent lesions are at increased risk for death and significant morbidity unless interventions are initiated to maintain patency of the ductus arteriosus (ie, prostaglandin therapy), ensure adequate mixing of deoxygenated and oxygenated blood, and/or relieve obstructed blood flow.
Impeded Lung Growth,
Delay or prevent (something) by obstructing them; hinder.
The Doctors had originally said Ansley Grace may or may not make it to her due date, July 27, 2017 but we cherish every day and every moment we have with her, to feel her move and talk to her and play music for her and sing to her and she is loved far more than could ever be described in words. She has changed my sister and our family in a way I cannot describe in words, and if God takes her home before her date or even if we get a few minutes or hours with her, she will be by Jesus's side and still loved dearly and missed by us all.
Then things took a tragic turn on May 12, Kim began to have contractions and premature labor but she was only 29 wks. She went to OU Children's Hospital but she stabilized that night was allowed to go home, only to have her water break a wk later on May 19 and return to OU where now it is imminent of her birth and how long we will get to enjoy time with this precious angel Baby Ansley Grace is uncertain but that is where we are now. This has all happened so suddenly and Kim had no way to anticipate or plan for any of this and is completely overwhelmed. The tremendous cost of this all is way more than Kim or Tray have, we are asking family, friends, anyone please if you can help Kim and the family in any way to give Baby Ansley Grace a proper resting place and make the final arrangements at this extremely hard time, no matter how big or small the amount they would greatly appreciate it to help send her little girl to rest with Jesus. The money collected will be given to Kim and used for all costs related to transporting and preparing, arrangements, services, burial plot and medical bills for Baby Ansley Grace and Kim.
Baby Ansley Grace's conditions are:
Alobar Holoprosencephaly, Anacephaly, Midline Cleft Lip & Palate, Omphalocele, three (3) different hery Critical congenital heart diseases, CAVC-Complete Atrioventricular Canal Defect, DORV-Double Outlet Right Ventricle with Pulmonic Stenosis, DDL-Ductal-Dependant Lesions, and her heart is at a ninety degree angle facing up, and lastly Impeded Lung Growth.
Alobar Holoprosencephaly, this is the most severe form with no separation of the cerebral hemispheres. There is usually a single ventricle. The corpus callosum and interhemispheric fissure are absent, and the thalami are unseparated.
Anencephaly, this is a serious birth defect in which a baby is born without parts of the brain and skull. It is a type of neural tube defect (NTD). As the neural tube forms and closes, it helps form the baby’s brain and skull (upper part of the neural tube), spinal cord, and back bones (lower part of the neural tube). This happens if the upper part of the neural tube does not close all the way. This often results in a baby being born without the front part of the brain (forebrain) and the thinking and coordinating part of the brain (cerebrum). The remaining parts of the brain are often not covered by bone or skin.
Midline Cleft Lip & Palate, A cleft palate is an opening or split in the roof of the mouth that occurs when the tissue doesn't fuse together during development in the womb. Cleft palate often includes a split in the upper lip (cleft lip).
Omphalocele, (pronounced uhm-fa-lo-seal) is a birth defect of the abdominal (belly) wall. The infant’s intestines, liver, or other organs stick outside of the belly through the belly button. The organs are covered in a thin, nearly transparent sac that hardly ever is open or broken. Because some or all of the abdominal (belly) organs are outside of the body, babies born with an omphalocele can have other problems. The abdominal cavity, the space in the body that holds these organs, might not grow to its normal size. Also, infection is a concern, especially if the sac around the organs is broken. Sometimes, an organ might become pinched or twisted, and loss of blood flow might damage the organ.
CAVC, Complete Atrioventricular Canal Defect,
A large hole in center of the heart affecting all four chambers where they would normally be divided. When a heart is properly divided, the oxygen-rich blood from the lungs does not mix with the oxygen-poor blood from the body. A CAVC allows blood to mix and the chambers and valves to not properly route the blood to each station of circulation.
DORV, Double Outlet Right Ventricle with Pulmonic Stenosis,
(DORV) is a rare congenital heart defect, meaning it’s a condition a baby is born with. In DORV, the pulmonary artery and the aorta — the heart’s two major arteries — both connect to the right ventricle. In a normal heart, the pulmonary artery connects to the right ventricle, and the aorta connects to the left ventricle. DORV creates a problem because the right ventricle carries oxygen-poor blood, which then gets circulated in the body.
DDL, Ductile-Dependant Lesions,
Infants with ductal-dependent lesions are at increased risk for death and significant morbidity unless interventions are initiated to maintain patency of the ductus arteriosus (ie, prostaglandin therapy), ensure adequate mixing of deoxygenated and oxygenated blood, and/or relieve obstructed blood flow.
Impeded Lung Growth,
Delay or prevent (something) by obstructing them; hinder.
Organizer and beneficiary
Mandy Taylor
Organizer
Lawton, OK
Amanda Graham
Beneficiary